This virtual support group – Holiday Edition! – provides a place to exchange, to promote a better understanding of the disease and its different stages, inspired by each person’s unique context and reality.
“Fighting with Positivity and Hope” – Elias Makos
When my 74-year-old mother began having mobility issues, my family assumed that old age was finally getting to my active mother who had always been a dynamo. But as different treatments failed to show any results, doctors began to suspect something far more
In this conference, Dr. Genevieve Matte, Neuroscience researcher at the CHUM Research Center, presents useful information on managing the new reality of telehealth in a COVID environment.
WATCH THE CONFERENCE (in English)
OUR LOCKDOWN IS REAL.
Locked inside my own body, confined to my wheelchair, deprived of my independence and freedom.
The COVID-19 pandemic and Amyotrophic lateral sclerosis (ALS), better known as Lou Gehrig’s disease, have a lot in common.
The pandemic has forced us all to isolate to some degree,
OUR VOICES ARE STRONGER TOGETHER TO ENSURE TIMELY ACCESS TO ALS TREATMENT
Our ambassador Norman MacIsaac, living with ALS since 2014, continues his mission to make the voice of all people with ALS in Quebec and Canada heard by creating this petition for faster access to treatment for Amyotrophic Lateral