New Rules for “Do Not Substitute” Prescriptions

As of April 24th, all persons diagnosed with ALS who are prescribed Rilutek® (brand-name) will be switched to the generic form riluzole as per a RAMQ mandate, even if the medical Doctor’s prescription mentions “Do Not Substitute”.  In addition, renewed Rilutek® prescriptions already bearing the instruction “Do Not Substitute”

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ALS Canada Publishes its 2014 Research Impact Report

Message from ALS Canada’s Director of Research
Download ALS Canada Research Impact Report
The past year has been a time of continued optimism and momentum in ALS research, complete transformation of the ALS Canada Research Program and unprecedented levels of awareness and fundraising. As we look back on the last 12 months, the

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Arthur J. Hudson Translational Team Grant Annoucement

Putting the Ice Bucket Challenge Funds to work
The ALS Society of Canada announced the team led by Dr. Lawrence Korngut, MD at the University of Calgary received the first Arthur J. Hudson Translational Team Grant. The team also includes Dr. Lorne Zinman, MD from Sunnybrook Health Sciences Centre

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We Celebrate National Volunteer Week

To All Our Volunteers…Thank You!

You help with our events, you play a critical role in our administration, , you immortalize our events by taking breathtaking pictures, you come to the office on a regular basis to perform a variety of administrative tasks, you provide a warm smile

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Luc Vilandré: Getting involved to make a difference

In 2004, Luc Vilandré’s big brother Pierre got the dire news that he had ALS. The 56-year old husband and father of three was a bon vivant. Luc says Pierre loved a good debate and fondly remembers a lot of feisty family gatherings with good food, good wine and good discussions.

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Jocelyn’s Story

Digging deep: finding strength

It was as if someone had punched him in the gut. Jocelyn Theoret was stunned by the news his 46-year-old wife Chantal Lanthier had Amyotrophic lateral sclerosis (ALS). “I was frozen, mute. My wife was asking the doctor questions but I was doubled over in

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