A festive and symbolic gathering in Montreal to fight Amyotrophic Lateral Sclerosis

Montreal, September 11th, 2019 – As of 9 :30am this Sunday, September 15th, families touched by Amyotrophic Lateral Sclerosis (ALS), researchers and the ALS Society of Quebec’s team will rally at Parc Maisonneuve as part of a symbolic walk in memory and in honor of Quebecers touched by Lou Gehrig’s disease. Nearly 900 participants are expected to join the event in support of ALS research and programs and services provided to families touched by ALS.

Celebrating a community coming together

 In addition to raising funds in support of the ALS Society of Quebec, the event also aims at celebrating the ALS community and the initiatives that have been taken throughout the province to support the organization’s mission. The nine Walks to End that took place across the province and the annual Ride to Fight ALS powered by TELUS Health annual cycling event that took place from August 23 to 25 in the Mauricie region managed to rally many families to our cause and raise awareness for this disease that is too little known. MC Olivier Lapointe will be hosting the festive gathering while musicians Brian Harbec and Chloé Pichette from BHCP events will set the pace for this mobilization.

Looking back on ALS Awareness Month

In June,  the ALS Society of Quebec launched its ALS Awareness Month Campaign in collaboration with agency Cartier in the form of a video called “For quick Sale. Reason : ALS.”. The video depicts a big item sale : items that people touched by ALS have to give up as their legs, arms, and muscles progressively give them up. Objects that belonged to families touched by ALS have also been put on sale on Kijiji in order to reach more people. As some of these items have not been sold, they will be up for grabs at the Walk to End ALS this Sunday as a way to re-enact the campaign and raise more funds for the cause.

 

One step closer to a future without ALS

With a $115,000 fundraising goal, this initiative closes the loop on the series of 9 Walks that took place across the province since the beginning of summer. These walks aimed at raising awareness within the general public and collecting funds to support research and maintain the quality of services provided to Quebecers living with ALS and their loved ones. 40% of proceeds support cutting-edge research currently taking place in Canada and particularly in Quebec. The complementary 60% of proceeds support direct services for people living with ALS at every stage of the disease.

Montreal Walk Schedule

Location : Parc Maisonneuve

Address: 4601, rue Sherbrooke Est, Montréal, QC, H1X 2B1

Registration :   9:30am
Départ : 11am

To learn more about the Walks to End ALS and see pictures from previous editions, please see our press kit : http://bit.ly/médiasSLA.

ALS by the numbers

 

  • More commonly known as Lou Gehrig’s disease, Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disease that attacks the body’s nerve cells, and is usually fatal within five years;
  • People living with ALS gradually lose their ability to walk, speak, swallow, and breathe. They become prisoners within their own bodies, without losing their intellectual faculties;
  • In Canada, 2,500 to 3,000 people are living with ALS, including 600 in Quebec;
  • For every new ALS diagnosis, 1 person dies of ALS;
  • ALS can affect anyone: %90 of cases are random and %10 of cases are hereditary.

About the Walks to End ALS

Established in 2000, the Walks to End ALS aim at raising awareness about ALS to the general public, as well as raising funds to support research and maintain the quality of services offered to people touched by ALS and their loved ones. This year, 9 walks will take place in Quebec, namely in Saint-Hyacinthe, Outaouais/Ottawa, Trois-Rivières, Sherbrooke, Quebec, Laval, Rivière-du-Loup, Charlevoix and Montréal. Overall, 70 walks will happen in Canada. For more information, please visit http://walks.alsquebec.ca .

About the ALS Society of Quebec

The ALS Society of Quebec is the only non profit organization whose mission is to improve the quality of life of Quebecers touched by ALS and their families by:

  • Offering programs and services for people living with ALS, their caregiver and healthcare professionals;
  • Funding and promoting cutting-edge research projects in Canada;
  • Raising awareness with the general public and government officials.

 

For more information: als-quebec.ca

-30-

Source
Claudine Cook, Executive Director, ALS Society of Quebec
1 877 725-7725 ext. : (office) | 514 298-0540 (mobile) | [email protected]

Roxanne Goulet, Communications coordinator, ALS Society of Quebec
1 877 725-7725 ext. :102 (office) | [email protected]

Roxanne Goulet