Message from the President of the Board and the Executive Director
As we look back on the past year, we can’t help but feel overwhelmed with how much we’ve accomplished. We remain astonished by the incredible success of the ALS Ice Bucket Challenge. This phenomenal fundraising campaign inspired by a few families raised a historic amount of funds and shone a spotlight on ALS, ratcheting up visibility and awareness. The donations will fuel research into treatments and hopefully, one day, a cure and will provide the Society with an unprecedented opportunity to enhance and expand its services.
We know, all too well, how amyotrophic lateral sclerosis affects the whole family. More than ever we strive to lessen the burden on the families we serve to help them achieve the best quality of life possible. This year was no exception among our achievements: we increased the number of support groups held across Quebec; we nearly doubled the number of people receiving technical or financial aid and with a special grant from L’Appui Montréal, we hired two new psychosocial counsellors. Caring of someone with ALS is a 24-hour a day, seven-day a week job that takes a tremendous physical and emotional toll on caregivers. The Society has expanded its services for caregivers in Montreal and will continue to expand them across the province.
In December, we reached out to families, caregivers and health care professionals alike to gage their level of satisfaction with our current services and to assess their evolving needs. The results of this CROP survey will help us make more strategic investments in programs that address the most pressing needs of the community we serve.
It is a privilege to work with the Society’s passionate staff, active board of directors, and health professionals who remain committed to realizing our mission. Thank you all for your leadership, expertise, commitment and contributions.
Everything we have achieved this year and will achieve moving forward is due to our team and the generosity and support of our donors, our valued partners, our precious volunteers and all the families touched by ALS who inspire us to do the work we do. Together, we make everything we do possible. Thank you.
President of the Board
Vice-President, TELUS Health Solutions
ALS Society of Quebec