Books of interest

Here are some suggestions for ALS-related books that may be of interest to you. Do you have any other suggestions or useful information? Do not hesitate to send us your recommendations to [email protected]! * Please note that the ALS Society of Quebec is not responsible for the content within the following literary works.

Genova (Still Alice) captivates with the painful but unflinching story of the demise of celebrated concert pianist Richard Evans. The novel follows debonair Richard and his ex-wife Karina, once also a pianist, who have just undergone an acrimonious divorce after a long-poisoned marriage. Richard’s sudden diagnosis…

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By outlining the portrait of caring women throughout her personal journey, Janine Gagnon-Corbeil aimed to celebrate all the caring women she met at the Amyotrophic Lateral Sclerosis Society of Quebec (ALS) and thousands of other women who can do nothing but relate to her story. (Written in French)

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The sky is bright and clear : Chantal is one of the first female correctional officers at the Correctional Service of Canada. She quickly reaches the top to become the director of a penitentiary. However, big clouds are threatening the blue sky above her head. At 46 years old, Chantal learns that… (Written in French)

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ALS . . . Three letters that change people’s lives. FOREVER. How is it possible that someone can feel privileged to have made such a journey and feel convinced that her life is richer because of it? Wanda’s and Christopher’s journey with ALS was inundated with ups and downs, laughter and tears, and challenges and changes.

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This book is a compilation of several poems and thoughts expressing sometimes distress, but mostly wisdom, hope and even humor. The texts are presented in beautiful watercolor background giving each text a special atmosphere. 76 pages, printed on quality paper and presented tastefully. (Written in French)

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What happens to “orphan” diseases that aren’t big enough profit centers for the pharmaceutical industry or get caught in the web of government funding and academic research? Augie Nieto found out in the spring of 2005: At forty-seven years old he was diagnosed with ALS. Devastated, Augie struggled…

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Bec is adrift. It’s the summer before her junior year in college. She’s sleeping with a married professor, losing interest in her classes, and equivocating about her career. She takes a job caring for Kate, a thirty-six-year-old woman who has been immobilized by ALS. As it turns out, before the disease Kate was…

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Ulla-Carin Lindquist was happily married, with four adoring children and a successful career as a newscaster. All of that changed when her fiftieth birthday drew near, and she was diagnosed with ALS, also known as Lou Gehrig’s disease. In the face of this incurable, degenerative disease, Ulla kept a journal chronicling…

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A little over a year ago, Darcy Wakefield was a single, 33-year-old, athletic, workaholic English professor, a vegetarian who had never had a serious health problem or injury. Then she was diagnosed with ALS, and her world turned upside down. I Remember Running is Darcy’s story of change and loss…

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Jenifer Estess is a beautiful, successful, thirtysomething New Yorker with dreams of starting her own family when she is diagnosed with ALS, a fatal disease. Doctors tell her to max out her credit cards and prepare to die. That is precisely when Jenifer starts to live — dreaming deeper, working harder, and loving endlessly.

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When our mother was diagnosed with A.L.S. (Lou Gehrig’€™s disease), the family was faced with having to deal with the lengthy a €œprocess€ that dying becomes when one is afflicted with a degenerative disease. With her prognosis of two years to live, we found ourselves totally unprepared for the tough challenges…

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English professor at Lake Forest, Philip Simmons, tells the story of his own spiritual journey, which began when he was first diagnosed at the age of 35 with ALS, a deadly disease. With humour and wisdom, he answers life’s biggest questions and shows us how to live richly in the face of loss.

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Published by the ALS Society of Alberta,this book is well suited for children (aged 5-12) and is a story of love shared by a grandfather, who develops ALS, and his grandchild who learns to accept and understand the disease.  Their special bond remained unchanged. A few copies of this book are available for loan at the ALS Society of Quebec. (514) 725-2653. [email protected]

Mitch Albom rediscovered Morrie Schwartz, his college professor from nearly twenty years ago. Knowing he was dying of ALS. Mitch visited Morrie in his study every Tuesday, just as they used to back in college. This is a story of their rekindled relationship turned into one final ‘class’: lessons in how to live.

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