Caroline Chartier’s Story

I want to do this, so others don’t have to suffer the living hell that my father endured for nearly two years

SO OTHERS CAN LIVE…

I believe that true leaders are dreamers: they dare to dream about things that feel impossible today, and they inspire others to do the same. My dream is simple: I want to help finding a cure to ALS, the fatal, incurable neurological disease that took my father’s life when he was just 65 years old. This is why I have decided to commit myself to achieving a bold, absolutely crazy personal challenge: despite the fact that I am completely out of shape today, I have signed up to ride 300km for ALS on September 13 to 15, 2013. During that week-end, I will join my uncle Daniel, my aunt Claire and 125 other cyclists who share that same dream. There are probably 1000 reasons why I could fail, but I have decided to stay focused on the ONE reason why I must succeed: I want to do this, so others can live.

I want to do this, so others don’t have to suffer the living hell that my father endured for nearly two years, as every single muscle of his body randomly stopped functioning, one after the other. To the point where he could no longer walk, write, drive his car, get dressed, eat nor breathe on his own, making him prisoner of his own body, leaving only his heart and soul intact. I want to do this, so others can see their grand-children come to life, hold them in their arms, and watch them grow-up, as he used to enjoy. I want to do this, so others can organize family dinners, argue on political and social debates, do house renovation projects, watch “Les Boys” and enjoy so many other father and daughter happy times that I won’t get to enjoy with my dad anymore.

Research is progressing, and there is hope that very soon, the cause and a cure for this disease will be found. In the meantime, I have decided to live up to the famous saying, and “be the change I hope to see in the world”. Thank you for helping us get a step closer from our dream.

Caroline, in loving memory of my dad, Claude (1945-2010)

June 2013

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