The diagnosis of ALS, like a train that has to change tracks suddenly, imposes a change of direction on one’s own life and those of one’s loved ones. Unlike retirement, where it is possible to plan and choose the direction of one’s new life outside of work, ALS is an
Conference – ALS and Genetics
There are numerous clinical trials now ongoing with therapies targeting the genetic forms of ALS.
This webinar aims to provide information on genetics in ALS, the role of a genetic counsellor, considerations for genetic testing in ALS, and how therapies can target the genetic forms of ALS.
If the
Conference on ALS Research and Q&A (bilingual) – June 2021
We are pleased to present this bilingual presentation on current ALS Research, held on June 15th, 2021. A Q&A follows the conference. The conference was hosted by Dr. Richard Robitaille.
Palliative Care Conference by Anita Mehta, RN, PhD, CFT (Director of Education and Knowledge Exchange at the Montreal Institute for Palliative Care) and Véronique Després, SW (Director of Multidisciplinary Services at the St-Raphael Palliative Care Home and Day Centre)
The first part of this presentation, provided by Anita Mehta, addresses ALS and the long-term implications (including death). In addition, it addresses the concepts and philosophy central to Palliative Care and some common misconceptions. The application and implications of Palliative Care to ALS population is discussed. Finally, family caregiver implications
Directives médicales anticipées : Aspects légaux – Me Hélène Guay, BScN, BCL, LLM, (Droit de la santé et droits de la personne)
Me Hélène Guay dirige un cabinet juridique de litige et représente des victimes d’erreurs médicales ou leurs familles, et des personnes qui font l’objet de demandes ayant trait à leur capacité ou à leur intégrité. Elle intercède en faveur du respect des droits des personnes devant les instances administratives (plaintes
Videoconference – Optimizing ALS Nutrition in ALS: An Update by Madura Arunasalampillai, MSc PDt., Clinical Nutrionist at the MUHC
Madura Arunasalampillai is a registered dietitian with a Master’s degree in Nutrition. She works at the Montreal Neurological Hospital specializing in neurodegenerative diseases however her main focus is working with outpatients in the ALS clinic. She also works at the hemodialysis unit at Lachine Hospital.
Presentation in English
Conference on ALS Research and Q&A (bilingual) – February 2021
We are pleased to present this bilingual presentation on current ALS Research, held on February 24th, 2021. A Q&A follows the conference.
Speakers:
1. Dr. Richard Robitaille, PhD, Full Professor, Neurosciences Department, Université de Montréal
2. Dr. Angela Genge, Neurologist and Director of the ALS Clinic and the Clinical Research
McGill Cares Webcast: Living with and Supporting a Loved One with ALS – December 2020
The Mcgill Cares Webcast is designed to support informal caregivers. During this candid, 30-minute interview, Claire Webster, Alzheimer Care Consultant and Founder of the McGill Dementia Education Program talks with leading experts about Living with and supporting a loved one with ALS.
Dr. Angela Genge is Director of the Clinical
Videoconference on Telehealth – November 2020
In this conference, Dr. Genevieve Matte, Neuroscience researcher at the CHUM Research Center, presents useful information on managing the new reality of telehealth in a COVID environment.
WATCH THE CONFERENCE (in English)
Videoconference “Cannabis in ALS : management of difficult symptoms” – September 2020
In this conference, Dr Angela Genge, Director and Neurologist at the Neuro’s Clinical Research Unit, presents the main results of research on cannabis used for medical purposes for the treatment of certain symptoms linked to Amyotrophic Lateral Sclerosis (ALS).
WATCH THE CONFERENCE (in English)
Click here to view