Illusion

, ,

By Chantal Lanthier, living with ALS since 2013
Illusion
“You’re only as old as you feel!”
We’ve all heard that expression, right? Obviously, the older you get, the more your body starts to fail you. Yet, many of the older people I know tell me they feel “young inside” and

At a loss for words

, ,

By Chantal Lanthier, living with ALS since 2013
At a loss for words
I’m often told that my eyes speak volumes. Good thing, because I don’t have a voice anymore. Of all the losses I’ve had to go through over the past five years because of this disease, my voice

Chantal Lanthier’s column

, ,

Are you more a beach person or a hiking person? When you think about relaxing, what comes to mind? I’m sure that whatever you pictured, it has something to do with nature. As for me, I can’t get enough of long walks in the woods. The time I spend surrounded

Luc Cousineau’s Story

,

As long as there is a song…
I cherished the tought of being back on stage. However life decided otherwise.
On September 18, 2013, my amyotrophic lateral sclerosis diagnosis hit me like a tsunami.
The shock!
I was hit directly at the core. The feelings I had of sorrow, anger, fear,

Daniel Taillefer’s Story

,

Living life happily despite ALS
When I received my diagnosis that I have amyotrophic lateral sclerosis back in January 2014 it was obviously an incredible shock. After a difficult month in which I struggled to share the news with family and friends, I decided the live my life to the

Maurice Leclerc’s Story

,

“Life is beautiful”
Maurice Leclerc considers himself ‘lucky’. The 84-year old has five children and four grandchildren and numerous close friends. He was married for 25 years to the ‘loveliest person’ he’s ever met. He loved his job so much he worked till age 77.
A year into retirement, Maurice was diagnosed with

Robert Michaud’s Story

,

I speak to many people, famous and not, about my experiences living with ALS, to raise public awareness
The Inspirational Robert Michaud
If you were to ask me to describe myself, I would answer that I am the father of four wonderful kids, Philippe, Marie-Pier, Ann-Liese and Claudine, the husband of

Maurice Leclerc’s Story

,

The older I got, the more I became my one and only BEST FRIEND
A few years ago ……..
The older I got, the more I became my one and only BEST FRIEND.
AND the nice thing about it was that …………. this friend almost always agreed with me!
I’ve

Carlos Botehlo’s Story

,

In a warrior’s heart there’s no surrender. Though his body yells stop! His spirit cries…NEVER!
I remember when I was first diagnosed with ALS, I was sure that it was a death sentence. I’ve never been more mistaken! Don’t get me wrong, it’s been hard losing my physical self-sufficiency and

Alain Berard’s Story

,

Hello, my name is Alain Bérard. In July 2010, I began noticing certain symptoms, including a major decrease in energy. Despite being in peak physical condition (I ran the Ottawa marathon in May 2010), I felt more exhausted than usual. I had problems swallowing normally, and I noticed twitching in my

Chantal Lanthier’s Story

,

Living with ALS means learning to let go, to enjoy the present, and to appreciate the little things
Hello,
My name is Chantal Lanthier. I’m 47 years old, a wife, and the mother of an 18‑year‑old daughter. Until very recently, I worked for the federal government in a management position.

Chum de la SLA

,

Building a team for a solid future A fraternity of friendship and support – Laughing, sharing and inspiring
When Alain Bérard walked up to the podium to give his acceptance speech and thanks for raising the most money for the ALS Walks last year, he never would have guessed that

Ginette Beaudreault’s Story

,

Living a life to its potential — Inspired from a life taken too soon
Hello everyone!
My name is Ginette Beaudreault. I was born in Montreal, the fourth child of a family of five boys and two girls. None of my brothers and sisters have ever had any serious health

Guy Provost- It’s the time to share!

,

To lose the ability to communicate is like being invisible. What could be more important in life than being able to tell those close to us how much we love them?
Six months ago, when the law on medical assisted dying was passed, my husband chose the date on

Michel Tremblay-It’s the time to hope!

,

When you have ALS, hope is the main source of strength. Hope that researchers will find a treatment and hope that the care and support will help us get through this difficult journey.
I was 53 years old when I learned that I had Amyotrophic Lateral Sclerosis (ALS),

I’m still the same – Michael Soles

,

My arms may be less powerful than when I proudly wore #22, but I’ll still feel the greeting of your hand on my shoulder if we meet some day.
I’m still the same.
Determined. Humble. Positive.

“My eyes filled with tears, and so did Guy’s.”

,

Guy, an IT Specialist diagnosed three years ago with a form of ALS which affects one’s voice first, has never let the disease stop him from communicating with his network. But all that was being threatened. Guy’s disease had progressed, and his computer equipment was no longer adequate.

The Chantal Lanthier Award

,

“The Chantal Lanthier Award is to be awarded to a volunteer whose remarkable contribution to our mission makes them an inspiration to others. Since her diagnosis, Chantal has advocated, heart and soul, for the rights of people living with ALS and their caregivers. This award was created to act as a perpetual reminder of her profound humanity, which has touched so many of us.”

Our love is more powerful than anything – Alain and Dominique

,

“It’s the will to live, the will to continue that make our love more powerful than anything.”

Valentine’s Day Every Day – Chantal and Jocelyn

,

« Être à ses côtés et voir son magnifique sourire quotidiennement, malgré la maladie, me comble au plus haut point. C’est ça l’amour inconditionnel pour moi et ce sera comme ça jusqu’à la fin».

New album by Luc Cousineau

,

*Mr Luc Cousineau passed away on March 6 2017, a little over 3 years after he received his ALS diagnosis. 
“Tant qu’il y aura une chanson”
A figurehead of the Quebec music scene for the past fifty years, singer-songwriter Luc Cousineau has always had musical projects in mind. After the

Yves Brisson, living with ALS for two years, thanks you

, ,

Grateful dad with ALS thanks those who took the Ice Bucket Challenge
Donations will help him cope as disease progresses

Dumping a bucket of ice water over your head gives you a shock! But that is nothing compared to the shock Yves Brisson received on August 20, 2012 when

10 years with ALS: Carlos’ Story

,

 
I was 34 when I was first diagnosed with ALS 10 years ago, I was sure that it was a death sentence and my life, as I knew it was over. It’s been hard losing my physical self to the disease. It’s like a fresh flower losing its petals,