As the holidays approach, we’re often inclined to look back on the past year. What were the highlights? What are we thankful for? What do we want for the coming year? We asked members of the ALS community to share their thoughts about the year drawing to a close.
Over the past few months, my hope for the future has been shaken to the core. In March, my wife Nicole and I found out that I have an incurable neurodegenerative disease called amyotrophic lateral sclerosis.
But just when I’d almost given up hope, it was restored in the form of Dr. Richard Robitaille and his team of ALS researchers at Université de Montréal.
On November 20, my wife and I, along with my friend Max and his wife Sylvie, spent the day with Dr. Robitaille at his lab, a unique experience that we’d bid on during the last online auction in support of ALS Quebec.
After spending a whole day with the researchers, I realized that I’m not the only one who cares about finding a cure. Even their masks and safety glasses can’t hide the sheer passion and determination with which they measure, record, compile, calculate and recalculate the astronomical amounts of data they need to process on a daily basis to unravel the mystery of ALS.
In a cold and sterile environment, I got to know these warm and caring people who have so much empathy for me and for everyone living with ALS.
“Our team was honoured to have Mr. Aubert and his friends visit our lab. The goal of the exercise was, first and foremost, to bridge the divide between the research community and the families touched by ALS who, just like us, survive on hope. Meeting Mr. Aubert really changed our lives by opening up our eyes to his situation and reminded us of why we do what we do.”
– Dr. Richard Robitaille, full professor, Department of Neuroscience, Université de Montréal, and member of ALS Quebec’s Board of Directors
If there’s one lesson I’ve learned this year, it’s that as long as there is life, there is hope. When you give to ALS Quebec, you give the researchers and everyone living with ALS the strength to carry on.
And for that, I thank you.
Victoriaville, diagnosed with ALS in March 2018
Your donation to the ALS Society of Quebec will immediately provide families touched by ALS with:
- The hope that researchers will find a cure;
- Assistive technology, e.g., the rental or loan of a wheelchair, an assistive communication device, or coverage of the monthly costs of a medical alert/monitoring service;
- Financial support to adapt their homes;
- Respite programs to give caregivers and ALS patients a breather;
- Psychosocial support and an information and referral service;
- Social activities to give them an opportunity to forge relationships with others.
During this holiday season, make a donation to ALS Quebec and give twice as much hope to families touched by ALS as your gift will be matched!
All gifts received before December 31st, 2018 will be matched by The Tenaquip Foundation up until $50,000.