To lose the ability to communicate is like being invisible. What could be more important in life than being able to tell those close to us how much we love them?
Six months ago, when the law on medical assisted dying was passed, my husband chose the date on which he said he wanted to leave this life: December 1st, 2016. Before the holidays! He could not bear the idea of reliving what he had endured last Christmas; his inability to communicate with us, his friends and family. My beloved husband was at his absolute lowest point: ALS (Amyotrophic Lateral Sclerosis) had not just paralyzed his arms and legs, it had also taken his voice, locking him up with his solitude, anguish and anger. This was a terrible fate for a man so brilliant, sociable and loving!
Today things have changed! After many efforts by ALS Quebec, Guy has finally received a TOBII machine and now he is living a true renaissance! This technology allows him to communicate again, thanks to a device that tracks every movement of his retina and transmits it onto the screen of his computer.
The world has opened up again for Guy! His TOBII not only allows him to express himself, to share his thoughts and give advice to our teenaged daughters, it also allows him to catch up with his friends on social media, to shop online and to share his knowledge. Guy is a computer technician, so you can imagine how much he loves this. To see his face light up once again has been such a blessing to our family!
ALS is irreversible. There is no cure nor treatment, so you can be sure that your gift and your compassion provide priceless support to people touched by this disease. Thanks to you, they can make the most of the cherished moments with friends and family.
In fact, this holiday season, we will be welcoming guests at our home and my husband will have the pleasure of conversation with them! You can imagine how much we will treasure these happy times which will stay in our memories forever.
Be twice as generous!
During this holiday season, make a donation to ALS Quebec and give twice as much support to families touched by ALS as your gift will be matched!*
$25 = $50
$50 = $100
$100 = $200
*All gifts received before December 31st, 2016 will be matched by The Tenaquip Foundation up until $40,000.
Guy Provost and Nathalie Lenting with their daughters Liana and Lydia
It has been a long and difficult road for Guy, nearly one whole year during which he could not talk! Today, he has his voice back. Truly, the Christmas holidays are a time for sharing! Please support ALS Quebec whose mission is to help them at every stage of their illness.
We thank you from the bottom of our hearts!
Guy’s wife and caregiver
A few words from Guy
Guy wants you to know how much he appreciates your support. He sends you this message composed through eye movements using his TOBII:
“I am happy to be able to say once more, I love you!”
He also wanted to share with you his wishes for the Holidays:
“I truly hope that we will find a cure!”
And a few personal thoughts:
“To stay in touch with one’s surroundings and loved ones is important.. The disease makes us prisoners inside our bodies, but it does not take away
our capacity to think or love!”
Give today and your gift will be twice as powerful!
Guy and his wife Nathalie, on September 28th, 2016, when Guy received his Tobii
The ALS Society of Quebec depends essentially on the support of people like you. Your gift will allow them to continue to provide these services to families affected by ALS:
- Technical and financial aid;
- Psychosocial support;
- Social and networking activities;
- Hope that researchers will someday find a cure