Montreal, Thursday, November 15, 2018 –On this National Philanthropy Day, Vincent Bourque and his wife, Isabelle Lessard, are pleased to announce the launch of the Vincent Bourque Foundation, which they hope will help to eliminate Amyotrophic Lateral Sclerosis (ALS) once and for all, as well as provide support to the families touched by the disease, in partnership with the ALS Society of Quebec.
In May 2015, Vincent Bourque was diagnosed with ALS. He was 40 years old. In the face of this devastating disease, Vincent, Isabelle and their three daughters refused to throw in the towel and have taken action. A former portfolio manager with the Bourque Rainville Group of RBC Dominion Securities, Vincent inspired his clients and friends to support the cause and the collective movement that gave rise to the foundation that now bears his name.
“Until a cure is found, every family touched by ALS should have access to the best possible care and services to help maintain their independence, mobility and quality of life.” say Vincent and Isabelle. “The Foundation hopes to achieve this goal by supporting and working with via the ALS Society of Quebec.”
The Vincent Bourque Foundation : Searching for solutions
In addition to supporting families touched by ALS via the ALS Society of Quebec, the Vincent Bourque Foundation will fund ALS research through the ALS Canada Research Program. The Foundation is also committed to supporting the annual André-Delambre Foundation’s ALS Research Symposium, where internationally renowned ALS researchers meet to share their knowledge and latest discoveries. “We hope to play a part in creating momentum around ALS research. The recent scientific breakthroughs give us hope that we will soon find a treatment that will significantly increase quality of life for ALS patients, and possibly even cure them of the disease,” say Vincent and Isabelle.
ALS in brief
- Also known as Lou Gehrig’s disease, ALS is an incurable neurodegenerative disease with an average life expectancy of 2 to 5 years after diagnosis;
- People living with ALS gradually lose their ability to walk, speak, swallow, and eventually breathe as their motor neurons are destroyed. They become prisoners in their own bodies without ever losing their senses or their intellectual faculties.
- In Canada, 2,500 to 3,000 people are living with ALS, including about 600 in Quebec;
- For each new case of ALS diagnosed, one person dies from the disease.
About the ALS Society of Quebec
The ALS Society of Quebec is a non-profit organization dedicated to improving the quality of life of ALS patients and their loved ones. The Society, whose mission also includes funding leading-edge Canadian research projects, relies on donations and revenues from its fundraising activities. For more information, visit www.als-quebec.ca.
Roxanne Goulet, Communications and social media coordinator, ALS Society of Quebec
1 877-725-7725, ext.102 (office) | [email protected]