Videoconference on Telehealth – November 2020

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In this conference, Dr. Genevieve Matte, Neuroscience researcher at the CHUM Research Center, presents useful information on managing the new reality of telehealth in a COVID environment.
WATCH THE CONFERENCE (in English)

The lockdown through the eyes of Chantal Lanthier

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OUR LOCKDOWN IS REAL.
Locked inside my own body, confined to my wheelchair, deprived of my independence and freedom.
The COVID-19 pandemic and Amyotrophic lateral sclerosis (ALS), better known as Lou Gehrig’s disease, have a lot in common.
The pandemic has forced us all to isolate to some degree,

PETITION – For Faster Access to Treatment for Amyotrophic Lateral Sclerosis (ALS)

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OUR VOICES ARE STRONGER TOGETHER TO ENSURE TIMELY ACCESS TO ALS TREATMENT
Our ambassador Norman MacIsaac, living with ALS since 2014, continues his mission to make the voice of all people with ALS in Quebec and Canada heard by creating this petition for faster access to treatment for Amyotrophic Lateral

Videoconference “Cannabis in ALS : management of difficult symptoms” – September 2020

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In this conference, Dr Angela Genge, Director and Neurologist at the Neuro’s Clinical Research Unit, presents the main results of research on cannabis used for medical purposes for the treatment of certain symptoms linked to Amyotrophic Lateral Sclerosis (ALS).
 
WATCH THE CONFERENCE (in English)

Click here to view

Videoconference on adapted travel during the COVID-19 pandemic context – July 2020

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ADAPTED TRAVEL IN QUEBEC AND ELSEWHERE IN THE WORLD!
Travelling can sometimes be a headache for someone with a loss of autonomy, but with a little planning it can be a great source of pleasure! This conference will provide you with the necessary tools to organize a trip that meets

Videoconference on current ALS Research – June 2020

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We are pleased to present a bilingual presentation on Current ALS Research and an update on ongoing clinical trials, held on June 16, 2020. A short Question and Answer Period will follow the conference.
Speakers:
1. Dr.  Richard Robitaille, PhD, Full Professor, Neurosciences Department, Université de Montréal
2. Dr. Angela

Clinical Trials in ALS

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Webinair by Kristiana Salmon, BSc, EMBA, Assistant Manager, Clinical Research Unit at The Neuro( Montreal Neurological Institute/Hospital)
After completing a Bachelor of Science in Microbiology and Immunology at McGill University, Kristiana Salmon joined the Clinical Research Unit (CRU) of the Montreal Neurological Institute and Hospital (MNI/H) as a clinical research

COVID-19: Updates and resources

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COVID-19: The ALS Society of Quebec ensures the continuity of its programs and services
We know that this is a concerning time for many and we want to assure you that we are here for you. The safety of our families touched by ALS, our staff, volunteers and the public

National Caregiver Week 2019 – Doing More and Better Together for Caregivers

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 Press release
For immediate release
 
MONTRÉAL, Oct. 31, 2019 /CNW Telbec/ – This year, National Caregiver Week (NCW) is happening against an especially exciting backdrop in which the very first national policy for Quebec caregivers is under development. The partners of the TCNA are thrilled to be able to highlight caregivers, their

PJ Stock Competes in The Battle of the Blades in support of ALS

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 Press release
For immediate release
 
PJ Stock Competes in The Battle of the Blades in support of ALS

Montreal, September 18th, 2019- As of September 19th, former NHLer and television hockey broadcaster PJ Stock will take part in the 5th season of CBC’s Battle of the Blades,

The 19th Walk to End ALS in Montreal raised more than $125,000

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Press release
For immediate release
 
Montreal, September 16th, 2019 – Under a bright sunlight, nearly 900 participants and volunteers gathered at Parc Maisonneuve for the 19th Montreal Walk to End ALS. While some were walking in honor of a loved one living with Amyotrophic Lateral

A festive and symbolic gathering in Montreal to fight Amyotrophic Lateral Sclerosis

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Montreal, September 11th, 2019 – As of 9 :30am this Sunday, September 15th, families touched by Amyotrophic Lateral Sclerosis (ALS), researchers and the ALS Society of Quebec’s team will rally at Parc Maisonneuve as part of a symbolic walk in memory and in honor of Quebecers touched by Lou Gehrig’s disease.

More than $310,000 raised in Mauricie and Centre-du-Québec to fight amyotrophic lateral sclerosis

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Montreal, August 28th, 2019 – From August 23rd to 25th, more than 200 cyclists and volunteers gathered at Auberge Godefroy in Bécancour for the 12th edition of the Ride to Fight ALS powered by TELUS Health, the only annual cycling event supporting the Amyotrophic Lateral Sclerosis (ALS) Society of Quebec.

Plus de 200 cyclistes pédaleront pour vaincre la sclérose latérale amyotrophique au Centre-du-Québec et en Mauricie

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News release
For immediate release
 
More than 200 cyclists will ride to fight amyotrophic lateral sclerosis in the Centre-du-Québec and Mauricie regions
Montreal, July 3rd 2019 – From August 23rd to the 25th, more than 200 cyclists and volunteers will be joining the 12th edition of the

80th anniversary of Lou Gehrig’s farewell speech

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July 4th, 2019, marks the 80th anniversary of New York Yankee Lou Gehrig’s famous farewell speech. Despite decades of research, ALS remains a devastating diagnosis. As the search for a cure and support for families continue, we remain inspired by Gehrig’s bravery, and the words from his historic 1939 speech.

10 good reasons to participate in the Ride to Fight ALS

From August 23 to 25, nearly 250 cyclists and volunteers will gather at Auberge Godefroy in Trois-Rivières for the 12th edition of the Ride to Fight ALS powered by TELUS Health. Since 2008, the cycling challenge has generated more than $2.3 million in support of the ALS Society of Quebec.

Changing the game for the ALS community

United in the fight against ALS

Just under two years ago, Chantal Lanthier crossed paths with someone who very quickly became a dear friend: Denise St Pierre, who’s dedicated herself heart and soul over the past few years to supporting the cause of ALS. With a singular commitment, Denise

Changing the concept of hope for families touched by ALS

In August 2018, Isabelle Lessard and her daughter, Maria, then 14, participated in the Ride to Fight ALS for the first time, a deeply moving experience. Their husband and father, Vincent, was diagnosed with ALS in 2015. Since then, Isabelle has been actively supporting the cause, by co-founding the Vincent

Now available: ALS Quebec’s 2018 Annual Report

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You are a game changer
It’s hard to win against a tough opponent like Amyotrophic Lateral Sclerosis (ALS), but the actions you took in the past year changed the rules of the game. You changed the lives of families touched by ALS by supporting personalized programs and services for those

Changing the game for the ALS community

Engaging the dialogue with the government and the general public
Making game-changing progress means reaching out to Quebecers and government authorities to raise awareness for ALS and the realities and challenges that people touched by the disease have to face.

“I want to urge governments to pledge their support

Changing the future of ALS

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Bridging the gap between families and the research community
Guy Aubert’s hope for the future was shaken to the core after he was diagnosed with ALS in March 2018. But the Victoriaville man’s hope was restored by Dr. Richard Robitaille and his ALS research team. He and his wife, along

Changing the daily life of families touched by ALS

Offering personalized support across the province
Nothing can prepare someone for living with ALS, but thanks to your donations, our team can maintain and create new ways to support Quebec families touched by ALS throughout the province and at every stage of the illness.

 
 

Programs

Claudine Cook – I have found a united family

As the holidays approach, we’re often inclined to look back on the past year. What were the highlights? What are we thankful for? What do we want for the coming year? We asked members of the ALS community to share their thoughts about the year drawing to a close.
When

Isabelle Lessard – Love will carry us forever

As the holidays approach, we’re often inclined to look back on the past year. What were the highlights? What are we thankful for? What do we want for the coming year? We asked members of the ALS community to share their thoughts about the year drawing to a close.
On

Diane Tkalec – What I learned from being a caregiver

As the holidays approach, we’re often inclined to look back on the past year. What were the highlights? What are we thankful for? What do we want for the coming year? We asked members of the ALS community to share their thoughts about the year drawing to a close.
It

Guy Aubert – My hope was restored after this encounter.

As the holidays approach, we’re often inclined to look back on the past year. What were the highlights? What are we thankful for? What do we want for the coming year? We asked members of the ALS community to share their thoughts about the year drawing to a close.

Carole Paquin – For a moment, I forgot about ALS.

As the holidays approach, we’re often inclined to look back on the past year. What were the highlights? What are we thankful for? What do we want for the coming year? We asked members of the ALS community to share their thoughts about the year drawing to a close. Living

Launch of the Vincent Bourque Foundation

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Montreal, Thursday, November 15, 2018 –On this National Philanthropy Day, Vincent Bourque and his wife, Isabelle Lessard, are pleased to announce the launch of the Vincent Bourque Foundation, which they hope will help to eliminate Amyotrophic Lateral Sclerosis (ALS) once and for all, as well as provide support to

ALS Quebec launches Taking Care, a virtual learning environment for caregivers

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FOR IMMEDIATE RELEASE
 
Montreal, Thursday, November 8, 2018 – With the financial support of L’Appui national pour les proches aidants d’aînés and the collaboration of McGill University’s Steinberg Centre for Simulation and Interactive Learning (SCSIL), the Amyotrophic Lateral Sclerosis (ALS) Society of Quebec is proud to launch the virtual

National Caregiver Week 2018: Ten organizations are uniting their voices

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For immediate release
Montreal, October 29, 2018 – On the occasion of National Caregiver Week 2018, a dozen Quebec organizations working with caregivers are joining forces in an unprecedented effort and launching an awareness campaign under the slogan: Because we will all be caregivers.
From November 4 to 10, 2018,

ALS community raises $100,000 at the Walk for ALS at Maisonneuve Park!

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Montreal, September 25th 2018- On Sunday September 16th, over 800 participants gathered at Maisonneuve Park for the 18th edition of the Walk for ALS in Montreal in support of the Amyotrophic Lateral Sclerosis (ALS) Society of Quebec. Families touched by ALS, volunteers, researchers, Sabrina Cournoyer from the Salut Bonjour morning

The ALS community joins a game changing Walk for ALS in Montreal

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FOR IMMEDIATE RELEASE
 
Montreal, September 10th, 2018 – This Sunday September 16th, the Amyotrophic Lateral Sclerosis (ALS) Society of Quebec will team up with families touched by ALS and renowned ALS researchers as part of Montreal’s 18th Walk for ALS. Over 800 participants are

Illusion

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By Chantal Lanthier, living with ALS since 2013
Illusion
“You’re only as old as you feel!”
We’ve all heard that expression, right? Obviously, the older you get, the more your body starts to fail you. Yet, many of the older people I know tell me they feel “young inside” and

$320,000 raised by the Ride and Hike to Fight ALS

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News release
For immediate release
$320,000 raised by the Ride and Hike to Fight ALS
Montreal, August 28th, 2018 – From August 24th to 26th, the 11th edition of the Ride to Fight ALS powered by TELUS Health in support of the Amyotrophic Lateral

At a loss for words

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By Chantal Lanthier, living with ALS since 2013
At a loss for words
I’m often told that my eyes speak volumes. Good thing, because I don’t have a voice anymore. Of all the losses I’ve had to go through over the past five years because of this disease, my voice

Chantal Lanthier’s column

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Are you more a beach person or a hiking person? When you think about relaxing, what comes to mind? I’m sure that whatever you pictured, it has something to do with nature. As for me, I can’t get enough of long walks in the woods. The time I spend surrounded

A cycling and hiking event to fight ALS in the Eastern Townships!

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News release
For immediate release
A cycling and hiking event to fight ALS
in the Eastern Townships!
Montreal, August 1st, 2018 – From August 24th to 26th, 200 cyclists and volunteers will be joining the Ride to Fight ALS powered by TELUS Health in support of the Amyotrophic

Our online auction is on now!

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Starting now until July 16th, at 8pm, bid on incredible and unique auction packages in support of Quebec families touched by ALS from the comfort of your home. Thanks to many generous donors, the online auction includes over a hundred diversified items to suit all tastes and budgets! Ready, set,

A word from Susan Kennerknecht, new volunteer Chair of The ALS Society of Quebec’s Board of Directors

16 years ago, my mother was living with ALS. Today, as I write these words, I am optimistic and committed to doing everything I can, with you, to help further our ultimate mission forward: winning the fight against ALS.

It is an honor to be the new volunteer Chair

2017 ALS research review

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Together, we give hope.
ALS Quebec is proud to contribute to the ALS Canada Research Program, which invests in the best ALS research in Canada that will have significant impact on the global effort to create a future without ALS.
In 2017, 12 new research projects totalling $3 million were

Raising awareness: Together, our voices are heard

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Speaking out together
While a major part of our mission depends on our ability to listen to our members and their needs, our other key objectives include advocating for them, educating the public through various channels, and showing how your donations directly impact the lives of Quebec families living with ALS.

Support and services for our members: Together, we find strength

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Improving the quality of life of Quebec families touched by ALS
Learning you have ALS is devastating. The diagnosis stirs up all kinds of emotions — fear, worry, sadness and anger. From diagnosis to end-of-life care and bereavement support, our dedicated team of psychosocial counsellors and coordinators provide compassionate and knowledgeable

Now available: ALS Quebec’s 2017 annual report

Together, we stand united.
If there’s anything we’ve learned over the years, it’s that we can’t do it alone. Together, we’re the voice, the heart and the hope of the ALS community. Together, we’re able to accomplish great things. Every action, no matter how small, has a direct impact on

Chris Terry launches the “CHRIS ALS ALL-STAR PROGRAM”

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LAVAL, Québec (January 23, 2018) – The Laval Rocket is proud to announce Chris Terry’s commitment to the cause of the Amyotrophic Lateral Sclerosis Society of Quebec (ALS), more commonly known as Lou Gehrig’s disease. Terry has chosen to give two tickets to each

The Greatest Gift of all for Chantal & Jocelyn

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Thank you for giving families touched by ALS the greatest gift of all.
As the new year approaches, the ALS Society of Quebec would like to sincerely thank you for the generosity, confidence and support you’ve shown to the ALS community. Thank you for being part of  Team ALS and

The Greatest Gift of all for Martin, living with ALS

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What if you woke up one day and were no longer independent?
What if the things you take for granted started slipping away, day after day, without warning? If talking, eating and moving around suddenly became things you had to think about and plan? That’s what people living with

The Greatest Gift for someone living with ALS

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Who are your closest friends?
They’re the remarkable people who have become part of your life, who understand you, listen to you, support you, and are always there for you, in good times and in bad. Friendship is a precious gift, a gift that people with ALS often unexpectedly

The Greatest Gift for caregivers

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When was the last time you did something for yourself?
In the frenzy of daily life, we often forget about ourselves. Between work, kids, friends and family obligations, “me time” often falls to the bottom of the priority list. For the caregiver of someone living with ALS, downtime is

The Greatest Gift

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What’s the greatest gift you’ve ever received?
Whether it was a doll house, an electric train, a family vacation or a pet, you’ve surely unwrapped a gift in the past that made a lasting impression – a gift that you’d longed for and remember receiving like it was yesterday. This

ALS Canada awards $3 million for 12 new research projects

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2017 funding competition completes $20 million research partnership with the Brain Canada Foundation following the Ice Bucket Challenge

TORONTO, November 22, 2017 – Today, the ALS Society of Canada announced 12 exciting new research projects being funded in 2017 through the ALS Canada Research Program, which is supported by ALS Societies

A promising new medication for ‘Lou Gehrig’s disease’

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SOURCE: UdeMNouvelles 

Experiments conducted on worms, zebrafish, mice and, lastly, on human subjects in a limited clinical trial, conclude that pimozide may be effective in treating amyotrophic lateral sclerosis (ALS).

 
Researchers from the University of Montreal Hospital Research Centre (CRCHUM) and the Cumming School

Communications intern needed

Internship or volunteering opportunity
[Description available in French only]
Popularisée grâce au phénomène du Ice Bucket Challenge, la Société de la sclérose latérale amyotrophique (SLA) du Québec recherche un(e) stagiaire en communications. Le ou la stagiaire collaborera à des projets touchant les communications externes, les relations publiques et le marketing.

Web Coordinator needed

Internship or volunteering opportunity
[Description available in French only]
Tu veux apprendre ou perfectionner tes connaissances sur WordPress? Notre site web se refait une beauté et nous avons besoin de ton aide! Le jour du lancement approche, mais il y a encore beaucoup à faire. Deux périodes sont offertes :

Your events!

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They say we’re stronger together, and that’s what members of our community reminded us once again this year by putting together original and unique fundraising events. Thank you to all those who, just like us, are devoted to the cause and are willing to create awareness for ALS within their

Huddol, a new online community for caregivers

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A Breakthrough for Canadians Who Care
How do you create great health care solutions? Create a vision for optimal health care and then work backwards. For the team at Huddol that meant making sure that Canada’s 8.1 million family and friend caregivers could successfully navigate the care experience by relying

Every August until a cure

We’ll never forget August 2014.
It was after that turning point that we vowed to continue, every August, to recreate the wave of hope with which the Ice Bucket Challenge submerged the ALS community. One bucket of ice cold water at a time, the viral phenomenon led to millions of

PJ Stock: “We can’t do this alone”

On December 11, 2014, my brother Dean was diagnosed with ALS. He courageously battled the disease for 21 months. Dean died on September 23rd, 2016. He was 39-years old.
www.youtube.com/watch?v=NSoRhnEbJJk
On February 4th 2015, PJ Stock dedicated this video to his brother Dean (Courtesy of Sportsnet)
Dean’s and our family’s lives

Andrya Gallo: “My father wouldn’t give up”

On June 1st, Andrya Gallo lit a candle. Why? For her father Claudio, who fought a difficult battle against ALS for almost 5 ½ years.
December 30th 2010 was the day. Those of you that know about the disease, or football, would know that that was the day that Tony

Stella Wojas: breaking through the isolation

On December 11, 2015, at age 60, Stella Wojas got the shock of her life when she woke up after four days in a coma due to respiratory failure only to be told she had amyotrophic lateral sclerosis (ALS), a disease she’ll never recover from. Despite an overwhelming feeling

Jean-Pierre Canuel: “In order to break the ice, we need to find a cure”

Over the course of his 33 year career as a doctor, Jean-Pierre Canuel has certainly prescribed many doses of hope to his patients as he has guided them back to health. On the eve of his retirement as a physician however, the roles were reversed as he unwillingly became a

ALS Awareness Month

Like an ice cube, ALS melts away the muscles of those who are affected. Drop by drop, ALS will take their ability to talk, walk, swallow and eventually breathe before it takes their life away, in only 2 to 5 years. To this day, there is no effective treatment or

Odette Lacroix: winner of the 2016 Chantal Lanthier Award

Words are not enough to describe  Odette Lacroix’s tireless work for the Society, even now, at the age of 75! In recognition of her dedication,  Odette received the Chantal Lanthier Award, awarded to a volunteer whose remarkable contribution to our mission makes him or her an inspiration to others.
From the

Dominic Delambre, Luc Vilandré and Michel Simard : behind the Ride to Fight ALS’s success

Since its 2008 inception, the Ride to Fight ALS has brought together hundreds of cyclists and has generated over 1.6 million dollars, thus making it one of the Society’s flagship events. Luc Vilandré, Dominic Delambre and Michel Simard are among a long list of committed volunteers who have managed to

Gilles Martel: moving forward, one walk at a time

In 2003, the letters “A-L-S” increasingly resonated with the daily life of Gilles Martel.
While a certain Jean Lepage raised funds for ALS in the Charlevoix region, his very good friend Ghislain, and his wife Angèle, were facing the consequences of the disease. “We had known them for 25, 30

Nathalie Savard: “We all need to give, without expecting anything in return”

 
September 18, 2013. Wilfrid, Nathalie Savard’s dad, learns he has ALS.

The following month, Nathalie contacts the ALS Society of Quebec and learns that the team needs help with the Baie-Comeau ALS Walk. She, along with her sisters and her uncle, immediately jump on the opportunity to get

Elyse Claude Léveillé, Paula Stone and Diane Tkalec: sharing their expertise to support families

 
Elyse Claude Léveillé, Paula Stone and Diane Tkalec have traveled very different roads. This did not keep them, however, from putting their individual skills in service of a common goal: offering the best possible support to families who live with ALS everywhere across the province. All three are volunteers

Annie Huard: Giving a voice to caregivers

 
As an ambassador for HealthPartners and the Society, Annie Huard generously shares her story not only to raise ALS awareness, but also to give a voice to the hundreds of caregivers who often forget to take care of themselves.
In 2007, Annie’s world toppled over when her partner Claude,

Quebec Walks for ALS

All across Canada, thousands of people gather together and walk for ALS to demonstrate their support and solidarity towards families touched by the disease and Quebec is no exception.  From the Outaouais to Rivière-du-Loup and then to Montreal, 10 ALS Walks have taken place across the province to raise a

A dedicated community

The Society is made up of many men and women who dedicate their time and effort to helping us achieve our mission. It’s thanks to the commitment and involvement of these active community members that we’re able to make an even bigger difference in the lives of people living with

The Nouveaux Super-héros: Cycling to save lives

“People should ride for ALS because it’s such an incredible feeling to help those who can’t ride  and who’d give anything just to be on a bike, riding next to us. People living with ALS are the real superheroes.” –Simon Tooley, Ride to Fight ALS participant
For the second year

2016 ALS Research Review

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Investments in ALS research have always been a reason to be hopeful that one day there will be effective treatments for this devastating disease. As a result of generous donor contributions and our partnership with the ALS Society of Canada, we – and you! – helped to fund more than

Let’s break the ice—raising awareness

 
Raising awareness for ALS is an integral part of our mission. By communicating with the public through a range of different platforms, we succeed in educating and informing people—and, above all, breaking the taboos—about ALS. As with the many other communications released throughout the year, that was the goal

Listening to our families

As each case of ALS is different, our members and their needs are unique. Thanks to their feedback, we can adapt our programs and services to their reality. This information is essential in order to provide them with personalized support where and when they need it most.

The Régimbalds team up against ALS

When Jacques Régimbald, who was diagnosed with ALS in 2015, and his son, Martin, began raising money for the Walk for ALS in Laval, they had no idea just how big their efforts would pay off.
“When we first got started, we were aiming for $5,000, but after only three

Claudine Cook- It’s the time to give

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People living with ALS are the strongest people I have ever met.
Even as their muscles fail them, one by one, day after day, their strength of character never wavers. And I’m amazed every day by their families’ profound courage and resiliency. Everyone we meet here at ALS Quebec

The motivation behind our Third Caregiver Recognition Day

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“Today, we want to give you a little respite and acknowledge your dedication towards your loved ones” says Leigh Stephens, psychosocial counsellor at the Society, setting the tone for the third edition of Caregiver Recognition Day as part of Caregivers Week. On Sunday, November 6th, approximately 30 caregivers

Lettre ouverte : La quadrature du cercle? (in french only)

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Le 9 novembre 2016
Les proches aidants peuvent consacrer jusqu’à une vingtaine d’heures par semaine à une personne souffrant d’une maladie neurologique évolutive. Vingt-huit pour cent d’entre eux sont en détresse, le double de la proportion des aidants qui s’occupent d’une personne atteinte d’un autre

Canada’s rising stars in ALS research

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Canada’s rising stars in ALS research receive more than $1 million from the ALS Canada Research Program and Brain Canada
 
Three young investigators are pursuing ALS research thanks to funds raised through the Ice Bucket Challenge and matched by Brain Canada with financial support from Health Canada
The

Your events!

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More than ever this year, members of the community have taken initiatives to raise awareness and funds for the cause. We would like to acknowledge with profound gratitude the efforts and energy that these men and women put towards organizing exceptional events.  It is thanks to them and through initiatives

16th Edition of the Walk for ALS in Montreal: a success that goes far!

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Montreal, September 18th 2016- Today, nearly 1,000 participants gathered at the Parc Maisonneuve for the 16th edition of the Walk for ALS in Montreal in support of the Amyotrophic Lateral Sclerosis (ALS) Society of Quebec. Families touched by the disease, volunteers and researchers have walked 4km and contributed to the

16th Edition of the Walk for ALS in Montreal

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Montreal, September 14th, 2016 – The Amyotrophic Lateral Sclerosis (ALS) Society of Quebec will welcome on Sunday September 18th at Parc Maisonneuve over 1,000 participants, including families touched by ALS, players from the Montreal Alouettes and ALS researchers for this 16th annual Walk for ALS in Montreal. The Classics music

9th edition of the Ride to Fight ALS an historic success

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The 9th edition of the ALS Society of Quebec’s Ride to Fight ALS cycling challenge was an historic success, in terms of both number of participants and money raised. From August 26 to 28, 200 cyclists rode through the streets of Vaudreuil-Dorion and surroundings to support families touched by

9th Edition of the Ride to Fight ALS Cycling Challenge

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Montreal, August 19, 2016 – The Amyotrophic Lateral Sclerosis (ALS) Society of Quebec is set to kick off the 9th Edition of the Ride to Fight ALS powered by TELUS Health cycling challenge, which will take place August 26-28. The dedicated participants will ride through the streets of Vaudreuil-Dorion and will

Ice Bucket Challenge credited with ALS gene discovery

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By CBC News | Health
The Ice Bucket Challenge that went viral two years ago, raising hundreds of millions of dollars, has helped identify a new gene behind the neurodegenerative disease ALS, or Lou Gehrig’s disease, researchers say.
The challenge involved people pouring ice-cold water over their heads, posting video

ALS Awareness Month

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Saviez-vous que juin est le mois de sensibilisation à la SLA? Le Défi Ice Bucket a certes contribué à accroître la sensibilisation, mais nous avons besoin de vous pour poursuivre ce travail! Voici quelques idées toutes simples que vous, vos amis et votre famille pouvez facilement réaliser lors du Mois

Let’s Break the Ice!

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June is ALS Awareness Month: So let’s break the ice! Why don’t we get to know each other better? We have so much in common.
We’re the kind of people who never give up. The friend, the parent, the child. We support our family, we tear down the walls

Outing leaves participants in awe

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“Wow, wow, wow!!!! FREEDOM!!! What a terrific day. I’ve been imprisoned inside my body for years, and I never thought it possible to experience such a feeling of freedom…” says Ginette Beaudreault, who took part in a sailing excursion organized last summer at the Pointe Claire Yacht Club.

Respite Program: Caring for the Caregivers

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In 2001, Martin and Anick were planning their lives together, looking forward to great adventures, determined to climb their respective career ladders and to start a family. But fate had decided otherwise.

The ALS Society of Quebec is expanding its programs and services

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The Society expands its regional outreach
In 2015, one of the Society’s priorities was to extend its outreach to members across the province and to diversify its activities held outside the metropolitan area. As a result during this year, the Society traveled to thirteen administrative regions, organized more support groups

Stronger Together – Message from the President and Executive Director

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When we share our ideas, energy and philanthropic contributions we create a community that is truly stronger.  Together, we’ve accomplished a great deal in 2015. We have made sustainable investments in our services and contributed to major research grants in Canada.
A CROP survey of our members, caregivers and healthcare

Tony Proudfoot Training Fellowship 2016 Recipient

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The Tony Proudfoot Training Fellowship in ALS research at the Montreal Neurological Institute and Hospital supports promising young scientists at the master’s, doctoral and post-doctoral level who wish to undertake research projects that specifically focus on ALS.
This year, the winner of the Tony Proudfoot Fellowship is Dr. Audrey Dangoumau. 

Facteurs environnementaux de SLA – French only

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(French only) La sclérose latérale amyotrophique est une maladie neurodégénérative affectant le système moteur. Les causes génétiques expliquent 20% des cas et de nombreux gènes ont été identifiés comme étant liés à la SLA lors de ces dernières années contribuant ainsi à une augmentation des connaissances des mécanismes de la maladie. Cependant la maladie demeure principalement sporadique (80% des cas environ) et les déclencheurs sont difficiles à identifier.

ALS Research Projects in Canada

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On November 19th, 2015, the ALS Society of Canada announced historical investments to further research towards a treatment and a cure. Learn more about the 34 research projects across the country.

ALS research – Historic $15M investment

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ALS Research in Canada Receives Historic $15 Million Dollar Investment
Investments in ground-breaking research will support vision of making ALS treatable by 2024
Montreal (November 19, 2015) — On the anniversary of the announcement of the 2014 ALS Ice Bucket Challenge results and partnership between ALS Canada and Brain Canada,

National Caregiver Week

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From 1st to 7 November, the ALS Society of Quebec celebrates the National Caregiver Week
In the province of Quebec, there are about 1,500 caregivers who help a loved one living with amyotrophic lateral sclerosis. During this National Caregiver Week, we want to pay tribute to all caregiver, both past

15th Edition of the Walk for ALS in Montreal

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For immediate release
Montreal, September 21, 2015
 
On Saturday September 19, about 1,000 walkers, volunteers and partners gathered at Park Maisonneuve for the 15th edition of the Walk for ALS in Montreal. Thanks to generous participants and donors, over $120,000 was raised!
The Montreal Alouettes Remember Tony Proudfoot
The

15th Edition of the Walk for ALS in Montreal

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FOR IMMEDIATE RELEASE
Montreal, September 16, 2015
The Amyotrophic Lateral Sclerosis (ALS) Society of Quebec will welcome over 1,000 participants, including players from the Montreal Alouettes and ALS researchers on Saturday September 19th at Maisonneuve Park for the 15th annual Walk for ALS in Montreal. This year, the Society hopes

A Cycling Challenge to Defeat ALS

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FOR IMMEDIATE RELEASE

Montreal, August 19, 2015 – The Amyotrophic Lateral Sclerosis (ALS) Society of Quebec will fire off the starting gun for the 8th edition of Ride to Fight ALS sponsored by TELUS Health, a cycling competition being held from August 28 to 30, during which dedicated participants

Revive the icy wave for ALS this August and every August

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SOURCE: mtltimes.ca

Dean Stock with his wife Paula, kids: Luke,Grace and Sophie. Dean was diagnosed with ALS in December 2014 and as a family, they decided to help raise awareness and funds by taking part in the Society’s first PSA
Last August, social media blew up with

First Awareness Video Featuring the Stock Family

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We are very proud to present our very first awareness Public Service Annoucement (PSA). Featuring the Stock family, the video aims to show the disease behind the ice cubes.
Like so many others, Dean and Paula Stock and their three young children did the Ice Bucket Challenge in August 2014 to

2015 Ice Bucket Challenge: Join the Wave! Every August, until a cure

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Montreal, July 31, 2015 – A year after the spectacularly popular Ice Bucket Challenge, the world-wide ALS community is reviving the fundraiser in order to raise much needed funds for amyotrophic lateral sclerosis (ALS ), a rapidly progressive and invariably fatal disease. Surrounded by people living with ALS, researchers and partners,

WATCH: The Ice Bucket Challenge is back

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SOURCE: CJAD NEWS

Last year, former habs forward and media personality PJ Stock took part in the Ice Bucket Challenge, unaware that just a few months later, his brother Dean would be diagnosed with ALS.
Stock says the challenge represents more than just a brief

ALS Quebec reviving the ice bucket challenge

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SOURCE: CTV Montreal
The ALS Society of Quebec is trying to make the ice bucket challenge a viral phenomenon for the second straight year.

The Ice Bucket Challenge raises money for research into neuromuscular disease ALS. Also known as Lou Gehrig’s Disease, it’s characterized by the death of nerve

Two new programs launched!

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Supporting families as they navigate the progression of ALS
Last fall, The ALS Society of Quebec was pleased to announce that over 79,000 generous Quebecers raised $2,660 000 through the Ice Bucket Challenge. The funds are being allocated to two important areas: the national research program with ALS Canada, in which

Neuro News – June was ALS Awareness Month

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News from Montreal Neurological Institute and Hospital
As a major Canadian centre for amyotrophic lateral sclerosis (ALS) research and treatment, the Montreal Neurological Institute and Hospital – The Neuro, invites the public and the media to learn more about the disease and current research and treatments, to donate money for ALS

ALS Canada Research Forum

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Every year, ALS Canada brings the Canadian ALS research community together for the ALS Canada Research Forum.  This event is a venue for researchers to share ideas, form new collaborations and connect to the ALS community.

This year, the Forum

ALS Canada Supports the Government of Canada’s Decision to Extend the Compassionate Care Benefit to 26 Weeks

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MARKHAM April 21, 2015/CNW – ALS Canada is pleased the Government of Canada has decided to  extend the Compassionate Care Benefit (CCB) from 6 to 26 weeks – a benefit that will directly provide much needed financial assistance to Canadian families caring for a loved one with the terminal disease,

ALS Canada Publishes its 2014 Research Impact Report

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Message from ALS Canada’s Director of Research
Download ALS Canada Research Impact Report
The past year has been a time of continued optimism and momentum in ALS research, complete transformation of the ALS Canada Research Program and unprecedented levels of awareness and fundraising. As we look back on the last 12 months, the

We Celebrate National Volunteer Week

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To All Our Volunteers…Thank You!

You help with our events, you play a critical role in our administration, , you immortalize our events by taking breathtaking pictures, you come to the office on a regular basis to perform a variety of administrative tasks, you provide a warm smile

Arthur J. Hudson Translational Team Grant Annoucement

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Putting the Ice Bucket Challenge Funds to work
The ALS Society of Canada announced the team led by Dr. Lawrence Korngut, MD at the University of Calgary received the first Arthur J. Hudson Translational Team Grant. The team also includes Dr. Lorne Zinman, MD from Sunnybrook Health Sciences Centre

Quebec Entraide Campaign Raises $74,491!

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We are profoundly grateful towards the Government of Quebec for the $74,491 donation made possible though the 2014 Entraide campaign. Thank you to all employees and retired employees for your generosity!
On picture, from left to right : Pascale Despins, Director for Entraide, Odette Lacroix, volunteer, ALS Society of Quebec

ALS Society of Quebec publishes its second Annual Report

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Message from the President of the Board and the Executive Director
As we look back on the past year, we can’t help but feel overwhelmed with how much we’ve accomplished. We remain astonished by the incredible success of the ALS Ice Bucket Challenge. This phenomenal fundraising campaign inspired by

ALS Canada funds innovative ALS research in partnership with Brain Canada and the Government of Canada

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MARKHAM, ON, Jan. 26, 2015 /CNW/ – The ALS Society of Canada, in partnership with Brain Canada and the Government of Canada, are proud to announce the first research grant from the funds raised from the ALS Ice Bucket Challenge.  The Arthur J. Hudson Translational Team Grant will be used

Happy Holidays!

 

Wishing you a bucket full of peace, love and happiness this Holiday Season!
Thank you for making 2014 such a wonderful year!
From all of us at the ALS Society of Quebec
This image is graciously offered by Mylène Duchesneau in memory of her father.
 

ALS Canada Announces Funding for 2014 Discovery Grants

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The ALS Canada Research program was established to fund the top ALS research in Canada to meet ALS Canada’s strategic vision to find a treatment for ALS. Thanks to your support, we are pleased to announce the recipients of the 2014 ALS Canada-Brain Canada Discovery Grants.
This announcement marks the first

Ice Bucket Challenge Helps Families Touched by ALS

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Putting Ice Bucket Challenge donations to work
Supporting families as they navigate the progression of ALS

The Ice Bucket Challenge was lightening in a bottle. Thousands of people videotaped themselves dumping frigid water over their heads. It was an Internet sensation. It was fun, funny and quirky. But more

260,000 Canadians Raise Over $16 Million Through Als Ice Bucket Challenge

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ALS SOCIETIES ACROSS CANADA COMMIT $10 MILLION TO ALS RESEARCH AND ANNOUNCE NEW PARTNERSHIP WITH BRAIN CANADA FOR MATCHING RESEARCH FUNDING
OTTAWA (November 19, 2014) – ALS Societies across Canada are pleased to announce the ALS Ice Bucket Challenge in Canada raised $16.2 million due to the generosity of more

What a Memorable Summer!

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The Ice Bucket Challenge was a perfect storm of social media, celebrity and grass-roots philanthropy, producing an unprecedented viral social engagement during the dog days of summer.
The summer of 2014 will be remembered as the Ice Bucket Challenge Phenomenon  that brought our families and the community together across the

Ice Bucket Challenge brings new wave of volunteers

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In terms of numbers, the Ice Bucket Challenge was one of the most successful awareness campaigns in Canadian history. But there’s more to the numbers than the $16,2 million Canadians donated to the cause: the campaign also generated calls and emails from hundreds of people eager to support the

Ice Bucket Challenge raised spirits and funds for ALS

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Numerous fundraisers took the plunge this summer
PK Subban and Oprah did it. So did Leonardo DiCaprio and Bill Gates.  Thousands of Quebecers did it too! They took the Ice Bucket Challenge this summer sousing themselves with ice-cold water. Who knew you could have so much fun in support of

Ice Bucket Challenge : $16,2 million in Canada

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Ice Bucket Challenge : $16,2 million in Canada
Donations for research doubled
ALS Societies across Canada are pleased to announce the ALS Ice Bucket Challenge in Canada raised $16.2 million due to the generosity of more than 260,000 Canadians. This represents a record for donations to the ALS community in support

Ice Bucket Challenge credited with ALS discovery

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By CBC News | Health
The Ice Bucket Challenge that went viral two years ago, raising hundreds of millions of dollars, has helped identify a new gene behind the neurodegenerative disease ALS, or Lou Gehrig’s disease, researchers say.
The challenge involved people pouring ice-cold water over their heads, posting video

Symphonic Melody for Daniel Desjardins

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Maurice Desjardins is closely touched by ALS: his cousin, Daniel was diagnosed just over a year ago. Inspired by Daniel, Maurice composed a symphonic melody in his honour. Let yourself be carried away by the delicate notes of the piano, violons and flute symbolising the hope to conquer.
Tittle: HOPE

Thank you!

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One behalf of everyone touched by ALS, we want to say thank you. Thank you for the donation you made as part of the Ice bucket Challenge. Thank you for the empathy and compassion you showed us. This unprecedented viral movement you took part in not only raised

$179,000 raised at the Montreal Walk for ALS

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Montreal, September 23, 2014 The Amyotrophic Lateral Sclerosis (ALS) Society of Quebec raised $179,000 this Saturday at the 14th Walk for ALS in Montreal. The Walk was the seventh of eight held across the province. In total, over $296,000 was raised in Quebec thanks to the Walks for

Researchers and Football Players Gathered to Fight Against ALS

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Montreal, September 19, 2014 This Saturday, the ALS Society of Quebec will welcome players from the Montreal Alouettes, ALS researchers and some 1,000 walkers at Maisonneuve Park for the 14th annual Walk for ALS in Montreal.
The Alouettes to Help Tackle ALS
The Montreal Alouettes are proud to reaffirm

[French only] 232 000 $ pour la 7e édition du Roulez pour la SLA

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Montréal, mardi 16 septembre 2014 – La 7e édition du Roulez pour la SLA, organisé par la Société de la sclérose latérale amyotrophique (SLA) du Québec a été un véritable succès, totalisant 232 000 $. Une centaine de cyclistes ont bravé le froid, le vent et la pluie dans les Laurentides

[French only] Mot de remerciement de Chantal Lanthier

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Bonjour à tous, nouveaux et anciens cyclistes. Cette année, encore pour certains, vous avez décidé de roulez pour la SLA.
Je vous ai bien vu; vous êtes prêts: monture scintillante, pneus bien gonflés, mollets bien musclés, foufounnes bien padées et imperméables bien boutonnés. Vous êtes prêts à affronter, avec

[French only] Un défi cycliste pour vaincre la SLA

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Estérel, jeudi 11 septembre 2014 – La Société de la sclérose latérale amyotrophique (SLA) du Québec lancera le coup de départ de la 7e édition du Roulez pour la SLA, un défi cycliste de trois jours auquel participeront près de 120 cyclistes. Du 12 au 14 septembre, des gens

#ICEBUCKETCHALLENGE: Donations surpass $1,000,000

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MONTREAL, Aug. 28, 2014 – The Amyotrophic Lateral Sclerosis (ALS) Society of Quebec is pleased to announce that donations received thanks to the Ice Bucket Challenge have reached $1,100,000. Since the viral sensation reached the province on August 10th, over 39,000 Quebecers have taken the challenge of dumping a bucket of

#IceBucketChallenge donations reach $1.5M

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UPDATE: 2014-09-11 at 10AM – $1,550,000 raised through the Ice Bucket Challenge.
The ALS Society of Quebec is pleased to announce that donations from August 10 through spetember 11 2014 have reached an all-time high, thanks to the ALS Ice Bucket Challenge! Over 50 000 generous people made a donation online

Claudine and Véronique celebrate 10 years with ALS Society of Quebec

They take a look back at a decade of accomplishments
It’s hard to believe but it has been 10 years since Véronique Pignatelli, Director of Services and Programs and I joined the ALS Society of Quebec. It’s been a privileged to work alongside such an amazing team and a blessing

Excellent care in a friendly, relaxed, patient-centred environment

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The Neuro’s ALS Program is a model of compassionate care
The Amyotrophic Lateral Sclerosis (ALS) Program at the Montreal Neurological Institute and Hospital – The Neuro has an interdisciplinary team that delivers outstanding, tailor-made care to meet the needs of patients. The program which integrates research and patient care

Therapeutic Nanobodies for Amyotrophic Lateral Sclerosis

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Research Profile: Dr. Jean-Pierre Julien
Vaccination is a preventative medical technique designed to assist the body in developing an immune response to specific infections. Exposure to weakened versions of these infections causes our body to produce substances called antibodies that neutralize the infection and stand ready to prevent illness should

10th anniversary Fondation André-Delambre Symposium on ALS

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Researchers from around the world gather in Montreal
When he helped spearhead the organization of the first ALS Symposium on behalf of the Fondation André Delambre ten years ago, Dr. Jean-Pierre Julien hoped to do more than simply gather like-minded researchers for two days of speeches and presentations. The

Afflicted member advocates for respite care

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Chantal Lanthier spoke with LaPresse+ to defend disabled people’s rights. “Creating respite and housing resources for severely disabled people is a moral obligation for the Government.”

Click here to view the video

An ALS diagnosis comes as a shock and throws the lives of

ALS Community Celebrates 75th Anniversary of Lou Gehrig’s Speech

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75 years ago, New-York Yankee’s star player, Lou Gehrig, stood in front of 62,000 fans and spoke one of the most poignant speeches in the history of sports.
“For the past two weeks you have been reading about the bad break I got. Yet today I consider myself the

Tribute to Lou Gehrig

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“For the past two weeks you have been reading about a bad break I got. Yet today I consider myself the luckiest man on the face of the earth”– Lou Gehrig, July 4, 1939
Almost 75 years ago, Lou Gehrig, one of baseball’s greatest players, stood in front

June is ALS Awareness Month

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In Memoriam Day
The ALS Society of Québec launched ALS Awareness Month with the first edition of an In Memoriam day. The goal of this special day was to celebrate the lives of people who fought bravely against the fatal neurodegenerative disease. Yves Lafleur, psychosocial counsellor at the Society

ALS Canada Announces 2014 Tim E. Noël Fellowship Recipient

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David Taylor,Director of Research at the ALS Society of Canada announced Dr. Claire Leblond as the 2014 recipient of the Tim E. Noël Fellowship in ALS Research. Dr. Leblond is currently a postdoctoral fellow in the lab of Dr. Guy Rouleau at the Montreal Neurological Institute, McGill University and will be

Guy Rouleau awarded major prize

Dr. Guy Rouleau, Director of the Montreal Neurological Institute and Hospital -The Neuro, at McGill University and McGill University Health Centre, is being awarded the Prix d’excellence 2014 by the Collège des médecins du Québec, for his outstanding contributions to neurogenetics and medicine. Dr. Rouleau accepts the award today at

“Life is beautiful”: ALS slows but doesn’t stop Maurice

 
Maurice Leclerc considers himself ‘lucky’. The 84-year old has five children and four grandchildren and numerous close friends. He was married for 25 years to the ‘loveliest person’ he’s ever met. He loved his job so much he worked till age 77.

A year into retirement, Maurice was diagnosed with amyotrophic

Caring for the caregivers: the ALS Society of Quebec expands its services

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Caring for someone with amyotrophic lateral sclerosis (ALS) isn’t easy.  It is a 24-hour a day, seven-day a week job that takes a tremendous physical and emotional toll on caregivers.  To help caregivers cope, the ALS Society of Quebec is expanding the services available to those looking after a

Dr. Michael Strong: Science and medicine in the family genes

 
Lucille Ball famously said, “If you want something done, ask a busy person to do it.” The axiom applies to Dr. Michael Strong.  The title on his business card reads:  Dean, Schulich School of Medicine and Dentistry, Distinguished University Professor, Professor, Department of Clinical Neurological Sciences, Arthur J Hudson

National Volunteer Week

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Did you know that April 6-12 is National Volunteer Week?

We appreciate, more than words can express, all of the time and energy that you give to the Society so that we can fulfill our mission to raise funds for research and to support families living with ALS.

New hope for treating ALS: Patient stem cells help identify common problem, leading to clinical trials

Harvard stem cell scientists have discovered that a recently approved medication for epilepsy might be a meaningful treatment foramyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, a uniformly fatal neurodegenerative disorder. The researchers are now collaborating with Massachusetts General Hospital (MGH) to design an initial clinical trial testing

ALS Society at the Montreal Baseball Project Gala

 

The ALS Society of Quebec is thrilled to have taken part in this past weekend’s ‘Baseball Fever’ in Montreal by hosting the silent auction at the Montreal Baseball Projects Gala honoring the 1994 Expos. $30,000 was raised to support our mission thanks to our generous auction item donors and

ALS Society of Quebec Receives $54,522 from

 

The ALS Society of Quebec would like to extend its heartfelt thanks to employees and retired employees of Quebec Public Service for their generosity at the 2013 “Campagne d’Entraide“.
This donation helps the Society to fullfill its mission of offering services to families across the province.
On March 18,

CLSC and ALS Society of Quebec standing by to help

 
Lean On Me
It’s no secret navigating the health care system can be challenging.  It’s like a giant maze with care offered over here, equipment available over there, and support services provided someplace else. It can be confusing, frustrating and completely overwhelming especially if you or a loved one

Dr. Heather Durham dedicates life to studying ALS

Research is in her blood
Heather Durham, PhD won’t be paddling off in a kayak any time soon.  The researcher who focuses primarily on understanding amyotrophic lateral sclerosis (ALS) has no intention of hanging up her lab coat when she turns 65, the traditional age of retirement.  While she might enjoy

New support service for healthcare professionals

ALS Society of Quebec launches the Exchange teleconferences
ALS Society of Quebec in partnership with the Island of Montreal ALS committee recently launched the Exchange, a series of free teleconferences designed to provide information and facilitate discussions between health professionals caring for patients with amyotrophic lateral sclerosis (ALS). Held

Montreal hosts 2nd Quebec-France ALS/FTD conference

 
Dr. Heather Durham, PhD, researcher and professor at the Montreal Neurological Institute (MNI) of McGill University is co-organizer of the 2nd Quebec-France ALS/FTD conference to be held at the MNI, March 20-21, 2014. The inaugural conference was held in 2012 at the Institute du cerveau et de la moelle

New therapeutic target for Lou Gehrig’s disease

(Article in French only) Cette découverte liée aux protéines TDP-43 et FUS, présentes à la fois dans la SLA et la démence, pourrait favoriser la mise au point de nouveaux médicaments en plus d’améliorer les effets du riluzole, seul médicament approuvé à ce jour et destiné à freiner la

The holidays: A precious time of year

 
The holiday season is a time to get together with friends and families and to share memories, gossip and a laugh or two. However, when a loved is living with ALS the holidays can be a precious yet painful time of year.
“The holidays can be a very emotional

Marc and Elyse’s Story

 
The ALS Society of Quebec has a Technical Aid and Financial Assistance Program to support its members. These programs help defray the cost of purchase or rental of equipment and services. Your donations will directly improve the quality of life of people with ALS and their caregivers. Click here to

Valosin-Containing Protein/ALS Connection Strengthened

Mutations in the gene for an enzyme called valosin-containing protein (VCP) are known to directly cause a disease called Inclusion Body Myopathy associated with Paget’s disease of bone and frontotemporal dementia.
More recently, mutations in VCP have been associated with sporadic ALS in some individuals. To examine this association in

Statement from ALS Canada regarding dexpramipexole research results

Today Biogen Idec reported results from a Phase 3 trial investigating dexpramipexole (dex) in people with amyotrophic lateral sclerosis (ALS). The company said that the trial failed to show slowing of functional decline or improved survival and failed to demonstrate efficacy. Based on these results, the company is discontinuing development

9th edition of the Fondation André-Delambre Symposium

 

From left to right : Drs. Steve Perrin, Stanley Appel, Nobel Laureate Stanley Prusiner and Jean-Pierre Julien
Quebec City – The 9th Annual Symposium on ALS Fondation André-Delambre was held on September 20 and 21 at Laval University in Quebec City. The organizers of the Symposium, Jean-Pierre Julien and

6th Edition of Ride for ALS

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[French only] Montréal, le 11 septembre 2013 – Les médias sont invités au lancement de la 6e édition du Roulez pour la SLA à l’hôtel Sacacomie à Saint-Alexis-des-Monts. Cet événement à vélo unique de trois jours se tiendra du 13 au 15 septembre 2013 en Mauricie. La conférence

4th Edition of Ride for ALS, City Edition

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[French only] Venez accueillir les cyclistes à votre hôtel de ville!
Montréal, le 5 septembre 2013 – La Société de la Sclérose latérale amyotrophique du Québec, en collaboration avec la Ville de Boucherville, vous convie à la 4e édition du tour cycliste Roulez pour la SLA – Édition en