PETITION – For Faster Access to Treatment for Amyotrophic Lateral Sclerosis (ALS)

OUR VOICES ARE STRONGER TOGETHER TO ENSURE TIMELY ACCESS TO ALS TREATMENT

Our ambassador Norman MacIsaac, living with ALS since 2014, continues his mission to make the voice of all people with ALS in Quebec and Canada heard by creating this petition for faster access to treatment for Amyotrophic Lateral Sclerosis :


The development of ALS treatments is at a pivotal point. Over ninety treatments are presently undergoing clinical trials, of which a half a dozen treatments are in Phase 3 trials, and will be seeking approval in 2021.

That said, it currently takes 18 to 24 months to get official approval from Health Canada for a treatment, and even longer for patients in different provinces to have access to it.

This petition calls on the Minister of Health to create a pilot project to reduce the delay in obtaining access to innovative Health Canada approved ALS treatments to a maximum of 3 to 6 months.

This pilot project, in collaboration with other national, provincial and territorial stakeholders, could pave the way to timely access to innovative treatments for other devastating, incurable and terminal conditions.

 

–     To sign or share the petition with the hashtag #ALSPilotProject: https://petitions.ourcommons.ca/en/Petition/Details?Petition=e-2971

–     To join the group ALS: Canadian Advocacy / SLA : Défense de nos droits au Canada : https://www.facebook.com/groups/572761206769763

Fanny Demers