Stéphanie Plamondon’s Story

My grandmother is my idol and a model of courage for her battle with ALS

ALS struck the Plamondon family in the 1990s, at a time when research was much less advanced than it is today. My story is much like that of the more than 3,000 families with one or more people affected: ALS invaded the body of my vibrant 59-year-old grandmother, at a time when she had so many hopes and plans for the future.

The more time wore on, the more she began to fall and have trouble swallowing. ALS made my grandma a prisoner in her own body; in the end, all she could move were her eyes. You know that creepy-crawly feeling you get when a mosquito lands on you? Well, having ALS is like a mosquito that never flies away—that feeling never goes away…

At the tender age of six, I watched my grandmother fall victim to ALS. Where was the lady who played dolls with me? Why couldn’t grandma talk anymore?

Today, my grandmother is my idol and a model of courage for her battle with ALS—an experience that made me the person I am today. At 29 years old, I now have the chance to honour my grandmother’s memory by helping other families coping with this terrible disease. Follow my lead, volunteer for the Society!

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