Stronger Together – Message from the President and Executive Director

When we share our ideas, energy and philanthropic contributions we create a community that is truly stronger.  Together, we’ve accomplished a great deal in 2015. We have made sustainable investments in our services and contributed to major research grants in Canada.

A CROP survey of our members, caregivers and healthcare professionals provided valuable insights into their most pressing needs as well as their appreciation of our services. We were very proud to learn that overall satisfaction rate is at 95% with the Society’s team and its services (an increase of 12% compared to 2010). The survey highlighted the vital need for respite care while pointing out that “respite” means different things to different people. Rest assured that we are listening attentively to our community’s needs and taking action to respond to them.

Other notable initiatives: we enhanced our existing programs and services and launched two new financial aid programs designed to support caregivers and children who are significantly impacted when a family member is diagnosed with ALS. The Respite Financial Aid Program provides caregivers with additional support or the opportunity to take a break from their ongoing responsibilities. The funds for children’s activities allow families to continue to offer extracurricular activities for their children even when the financial burden of the disease increases, thus allowing kids to be kids during difficult times. Our extended programs and services support people living with ALS and their family during each stage of the disease.

While there are no treatments for ALS, we remain very optimistic. Funds raised across Canada during the 2014 Ice Bucket Challenge are already at work, fueling over 30 research projects from coast to coast.  We are hopeful that the community of passionate researchers will make remarkable discoveries in the coming years.

Everything we have achieved, we have done together: with our dedicated volunteers, our valued donors, our enthusiastic event participants, our passionate staff, our active board of directors and our partners. We are truly stronger together. Thank you for being part of our community!

Read our 2014-2015 Annual Report

Luc Vilandré
President of the Board
Vice-President and General Manager, Health Benefits Management and Payment Solutions, TELUS Health

Claudine Cook
Executive Director
ALS Society of Quebec

Executive Committee

Luc Vilandré
President
Vice-President and General Manager, Health Benefits Management and Payment Solutions, TELUS Health

Daniel Malandruccolo
Vice-President
Vice-President, Vast-Auto Distribution Ltd and Groupe MMO Inc.

Dominic Delambre, CPA auditor, CA
Treasurer
Delambre Gagnon CPA S.E.N.C.R.L.

Michel Simard
Secretary
National Director, RDTS Inc. –Imagine Division

Administrators

Alain Bérard
Account and Product Manager LANXESS Inc.
Person living with ALS

Josee Boivin
President, iSM Line

Caroline Chartier
Manager, communications, Rolls-Royce Canada

Me Boriana Christov
Lawyer, Canada Revenue Agency

Vincent Gagné
Director, Governmental Relations, TELUS

Dre Angela Genge, M.D., FRCP(c)
Neurologist, ALS Clinic Director Montreal Neurological Institute

Chantal Lanthier
Retired employee of Service Canada
Person living with ALS

Elyse Claude Léveillé
Teacher, former caregiver

Me Anabel Quessy
Lawyer, Fasken Martineau

Diane Tkalec, BScN
Nurse Clinician
Former Caregiver

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