Improving the quality of life of Quebec families touched by ALS
Learning you have ALS is devastating. The diagnosis stirs up all kinds of emotions — fear, worry, sadness and anger. From diagnosis to end-of-life care and bereavement support, our dedicated team of psychosocial counsellors and coordinators provide compassionate and knowledgeable support to families living with the disease.
We help empower those living with ALS, their caregivers and family members, by providing them with information about the disease and helping them navigate the health system and community services. To ensure those living with ALS receive the best possible quality of care, we provide free seminars to health professionals so they better understand the disease, its progression and the evolving needs of those in their care.
We know when it comes to a disease like ALS; one size simply does not fit all. Each person’s journey with the disease is unique with its own set of symptoms and natural progression. For this reason, we are committed to providing personalized supportive services, financial assistance and specialized equipment to meet each member’s individual needs. We organize a variety of in person and online social activities and networking events to break isolation, and to allow those living with ALS and their caregivers an opportunity to share their stories, worries and frustrations while offering one another emotional comfort and moral support.
Our philosophy is simple: we get to know each family personally and work hand-in-hand, partnering with them to improve their quality of life, enhance their comfort, and alleviate their suffering. We are a friend, an advocate, and a resourceful lifeline that Quebecers touched by ALS rely on and trust.
Programs & services: our highlights
- Over 3,000 clients served
(people living with ALS, caregivers,
healthcare professionals) - 600 persons living with ALS assisted
Connected with 1100+ family
members and 45 activities dedicated
to caregivers - Over 560 requests accepted for
diversified financial aid, including the
new bereavement support financial
aid program - Over 1,440 interventions for
personalized assistance and support - 1,322 registrations for
support activities - 61 support groups for people living
with ALS and their caregivers - 9 regional conferences and
- 7 webinars
- 10 social activities to break isolation
- 6 exchange forums for
healthcare professionals
