Our Programs and Services for People with ALS, Caregivers and Healthcare Professionals

The Amyotrophic Lateral Sclerosis Society of Quebec is dedicated to improving the lives of people living with ALS and supporting their caregivers. Through our close collaboration with healthcare partners, we are able to offer a variety of programs and services that are complementary to those offered by other organizations.

The needs of people living with ALS and their caregivers change during all stages of the disease, which is why the ALS Society of Quebec offers many different services. Through documentation, conferences, newsletters and a website, people with ALS, caregivers and healthcare professionals can learn more about issues with regard to ALS. A team of dedicated psychosocial counselors offers support to each member of the Society: through orientation meetings, support groups, phone support meetings and a toll-free support line. Social and networking activities help reduce social isolation felt by many.

Please note that in order to have access to our services, you need to be registered as a member.

To register

Please select the registration form that corresponds best to your profile:

Information on ALS

Conferences

In 2015, 15 conferences and 9 regional phone meetings have been held. Topics generally include research, nutrition, caregivers and many more! Be sure to subscribe to our Calendar newsletter to be the first to know about our upcoming conferences.

Documentation

Manual for people living with ALS: The seventh edition of the Manual For People Living with ALS is a useful tool filled with practical advice. Readers will find helpful tips on how to take charge of their health, manage ALS care and cope with the progression of the disease which in some cases can be rapid.

Fact sheets

Source: ALS Society of Canada

10 Facts About ALS  ALS Fact Sheet ALS, First Steps
Bulbar ALS ALS, MS and MD 10 Facts about Pain and ALS
When Speaking About ALS ALS Ways to Help Primary Lateral Sclerosis (PLS)
Clinical Trials Caregiver Stress Assisting Families Living with ALS
Reducing Stress Coping with Grief Compassion Fatigue
Spinal Muscular Atrophy Ventilation: Options and Decision Making Kennedy’s Disease
The Dangers of Unproven Therapies Natural Health Products Alternative Treatments
Natural Health Products—Understanding Complementary or Alternative Medicine Complementary Therapies Sexuality, Intimacy and Chronic Illness
ALS and Cognitive Changes Genetic Testing for ALS

Resources for Youth

The following booklets are available to help teens and children whose life is affected by the disease of a loved one.

Information on bereavement

Coping with Grief

This resource will help you understand the grieving process and assist you in your own experience with loss.

Information for Physicians

Guide to ALS Patient Care for Primary Care Physicians

To ensure that ALS patients receive the highest quality care, it is important for primary care physicians to be well informed about the disease, and to work with a team of specialists for their patient’s care.

This guide will help physicians:

  • recognize the signs and symptoms of ALS
  • understand ALS progression, symptom management, changing patient needs, and the importance of interdisciplinary ALS care
  • help patients and caregivers cope with this very complex and progressive neuromuscular disease

Newsletters

We send out two types of newsletters to keep you informed about our upcoming events and news from the ALS community.

InfoXpress: Monthly Events Calendar

Be among the first to know about our upcoming events! The InfoXpress is sent once a month and lists all our upcoming activities for our members, such as support groups, social activities, conferences and fundraisers.

Centaurea: Quarterly bulletin

The Centaurea is our quarterly newsletter and features inspiring stories of people touched by ALS, as well as researchers profiles, research news, our major fundraising events and different ways you can get involved for the cause!

Psychosocial Support

Orientation and reference

The ALS Society of Quebec offers its members personalized psychosocial support. Our team of four psychosocial counselors are dedicated to helping you and your loved ones during all stages of the disease.

Toll-free line

Contact us at 514 725-2653 (or toll-free in Quebec 1 877 725-7725) to speak to a psychosocial counselor or schedule an appointment. Our team of counselors can answer your questions and concerns, as well as those of your family.

Support groups

We organize monthly social and support activities such as outings, support groups, and conferences. These informal and friendly events are perfect to meet and exchange with people going through a situation similar to yours. Visit our Events Calendar to browse our upcoming events.

Teleconferences

In order to reach as many people throughout the province as possible, we offer many phone conferences.

Here are some upcoming events that may interest you:

Mar
23
Thu
Happy Hour for Caregivers @ ALS Society of Quebec
Mar 23 @ 17:00 – 20:00

Exchange – Respite – Massage– Entertainment

Come meet, grab a bite, enjoy a massage, and socialize with other caregivers in a warm and cozy atmosphere. Please join us! We look forward to seeing you!

Date and time: Thursday, September 29 from  5 pm to 8 pm
Location: The ALS Society of Quebec office, 5415, Paré St. Suite 200, Town of Mount-Royal, H4P1P7
Registration: Leigh Stephens at 514 725-2653, ext. 112 or lstephens@sla-quebec.ca

Financé par L'Appui Montréal

Mar
29
Wed
Becoming a better listener @ Caisse Desjardins du personnel municipal de Québec
Mar 29 @ 13:00 – 16:00
Becoming a better listener @ Caisse Desjardins du personnel municipal de Québec | Ville de Québec | Québec | Canada

Educational activity for caregivers in Quebec city

The goal of this workshop is to empower caregivers and people with ALS by improving their sense of well-being in the evolving context of the disease. Parents, spouses, children, siblings and friends are invited to partake. The workshop will be facilitated by Manon Fournier, nurse.

For more info contact: Manon Fournier at 418-883-6741 or manonfournier10@hotmail.com

Time: 1:00pm to 4:00pm
Location: Caisse Desjardins du personnel municipal de Québec, 600 boul. Pierre-Bertrand, coin Samson, Québec, G1M 3W5.
Registration : Odette Lacroix at 418 626-8726 / 418 655-8726 or lacmich@oricom.ca

Mar
30
Thu
Sugar shack outing- Laurentians region @ Cabane à sucre Lalande
Mar 30 @ 11:30 – 15:30
Sugar shack outing- Laurentians region @ Cabane à sucre Lalande  | Saint-Eustache | Québec | Canada

Members and caregivers are invited to celebrate the arrival of spring with our annual sugar shack outing! A free traditional meal will be served!

Location: Cabane à sucre Lalande – 862, Montée Laurin in Saint-Eustache  J7R 4K3
*There will be an adapted bus transportation available from our office – departure 10:45am*
Time: 11:30am to 3:30pm
Registration: Elizabeth at 514 725-2653, ext. 103 or ebarbosa@sla-quebec.ca  Please RSVP by March 23rd 

Apr
3
Mon
Support Group by NOVA West Island
Apr 3 @ 18:00 – 20:00
Support Group by NOVA West Island @ Beaconsfield | Québec | Canada

ALS caregiver support Group

In partnership with Nova West Island and with the generous support of the Tony Proudfoot Fund, monthly meetings are organized with fellow ALS caregivers to discuss some of the challenges each are facing. Although each person engages according to their comfort level, caregivers are encouraged to participate by sharing their personal experiences with others who are in a similar situation.

When: The 1st Monday of every month from 6-8 pm

Where: 447 Beaconsfield Blvd. Beaconsfield, H9W 4C2

Nova West Island will provide free of charge:

  • Two experienced home care nurses to facilitate the group
  • Health Care Aides, for home support, [in our catchment area] to facilitate the caregivers attendance at the meetings

Possible topics and guest speakers:

  • Home adaptation
  • Community resources
  • Insurance coverage
  • Compassionate Benefits
  • Spiritual guidance
  • Social worker/Family Therapist
  • Children Support

For more information or to register, please contact Viviane Schami at 514-695-8335, ext. 209 or e-mail vschami@novawi.org

Apr
4
Tue
Sugar shack outing- Chaudière-Appalaches @ Érablière du Cap
Apr 4 @ 11:30 – 15:30
Sugar shack outing- Chaudière-Appalaches @ Érablière du Cap | Saint-Nicolas | Québec | Canada

Members and caregivers are invited to celebrate the arrival of spring with our annual sugar shack outing! A free traditional meal will be served!
*Please RSVP by March 28th

Social activities and networking events

We organize three types of social activities and networking events.

  • Support and education events
  • Social activities
  • Fundraising activities

Here are our upcoming events

Mar
23
Thu
Happy Hour for Caregivers @ ALS Society of Quebec
Mar 23 @ 17:00 – 20:00

Exchange – Respite – Massage– Entertainment

Come meet, grab a bite, enjoy a massage, and socialize with other caregivers in a warm and cozy atmosphere. Please join us! We look forward to seeing you!

Date and time: Thursday, September 29 from  5 pm to 8 pm
Location: The ALS Society of Quebec office, 5415, Paré St. Suite 200, Town of Mount-Royal, H4P1P7
Registration: Leigh Stephens at 514 725-2653, ext. 112 or lstephens@sla-quebec.ca

Financé par L'Appui Montréal

Mar
29
Wed
Becoming a better listener @ Caisse Desjardins du personnel municipal de Québec
Mar 29 @ 13:00 – 16:00
Becoming a better listener @ Caisse Desjardins du personnel municipal de Québec | Ville de Québec | Québec | Canada

Educational activity for caregivers in Quebec city

The goal of this workshop is to empower caregivers and people with ALS by improving their sense of well-being in the evolving context of the disease. Parents, spouses, children, siblings and friends are invited to partake. The workshop will be facilitated by Manon Fournier, nurse.

For more info contact: Manon Fournier at 418-883-6741 or manonfournier10@hotmail.com

Time: 1:00pm to 4:00pm
Location: Caisse Desjardins du personnel municipal de Québec, 600 boul. Pierre-Bertrand, coin Samson, Québec, G1M 3W5.
Registration : Odette Lacroix at 418 626-8726 / 418 655-8726 or lacmich@oricom.ca

Mar
30
Thu
Sugar shack outing- Laurentians region @ Cabane à sucre Lalande
Mar 30 @ 11:30 – 15:30
Sugar shack outing- Laurentians region @ Cabane à sucre Lalande  | Saint-Eustache | Québec | Canada

Members and caregivers are invited to celebrate the arrival of spring with our annual sugar shack outing! A free traditional meal will be served!

Location: Cabane à sucre Lalande – 862, Montée Laurin in Saint-Eustache  J7R 4K3
*There will be an adapted bus transportation available from our office – departure 10:45am*
Time: 11:30am to 3:30pm
Registration: Elizabeth at 514 725-2653, ext. 103 or ebarbosa@sla-quebec.ca  Please RSVP by March 23rd 

Mar
31
Fri
Tony Proudfoot Ergathon @ Dawson College
Mar 31 @ 18:00
Tony Proudfoot Ergathon @ Dawson College | Westmount | Québec | Canada

The 10th annual Tony Proudfoot Ergathon fundraiser will be held on Friday, March 31st at Dawson College at 6: 00 PM.

This year’s fundraising goal is $20,000. Organized by the Dawson Rowing Team, it benefits equally the Tony Proudfoot Fund at the ALS Quebec and the Rowing Team’s own activities.

Your support by participating and/or donating to this year’s event will help us make this year’s 10th anniversary Tony Proudfoot Ergathon the most successful ever. The cost for registration is $25.

The event consists of a recreational challenge for friends and family and a team challenge for rowers. For more information, visit the event’s website.

If you have any questions, please contact us at tonyproudfootergathon@gmail.com

This is a really unique and exciting event on the indoor rowing calendar! Hope to see you there!

Apr
1
Sat
A shopping bag from Felix Homme boutique that makes a difference! @ Place Rosemère and Galeries St-Hyacinthe
Apr 1 all-day
A shopping bag from Felix Homme boutique that makes a difference! @ Place Rosemère and Galeries St-Hyacinthe

The Félix Homme boutiques are proud to partner with the ALS Society of Quebec. For each reusable bag sold for as little as $1 between November 2016 to April 2017, 50 cents will be donated to the Society.

An ecological way to contribute to improving the quality of life of people affected by ALS and finding a cure!

It is Sophie, manager at the Rosemère boutique, who had the initiative to propose the idea in honor of her mother, diagnosed with ALS in 2015.

Place Rosemère
401 Boulevard Curé-Labelle, Rosemère, QC, J7A 3T2

Galeries St-Hyacinthe
3200, Boulevard Laframboise, Saint-Hyacinthe, QC J2S 4Z5

www.felixhomme.com

Apr
3
Mon
Support Group by NOVA West Island
Apr 3 @ 18:00 – 20:00
Support Group by NOVA West Island @ Beaconsfield | Québec | Canada

ALS caregiver support Group

In partnership with Nova West Island and with the generous support of the Tony Proudfoot Fund, monthly meetings are organized with fellow ALS caregivers to discuss some of the challenges each are facing. Although each person engages according to their comfort level, caregivers are encouraged to participate by sharing their personal experiences with others who are in a similar situation.

When: The 1st Monday of every month from 6-8 pm

Where: 447 Beaconsfield Blvd. Beaconsfield, H9W 4C2

Nova West Island will provide free of charge:

  • Two experienced home care nurses to facilitate the group
  • Health Care Aides, for home support, [in our catchment area] to facilitate the caregivers attendance at the meetings

Possible topics and guest speakers:

  • Home adaptation
  • Community resources
  • Insurance coverage
  • Compassionate Benefits
  • Spiritual guidance
  • Social worker/Family Therapist
  • Children Support

For more information or to register, please contact Viviane Schami at 514-695-8335, ext. 209 or e-mail vschami@novawi.org

Apr
4
Tue
Sugar shack outing- Chaudière-Appalaches @ Érablière du Cap
Apr 4 @ 11:30 – 15:30
Sugar shack outing- Chaudière-Appalaches @ Érablière du Cap | Saint-Nicolas | Québec | Canada

Members and caregivers are invited to celebrate the arrival of spring with our annual sugar shack outing! A free traditional meal will be served!
*Please RSVP by March 28th

Support Group – Monteregie @ Centre Montérégien de Réadaptation
Apr 4 @ 13:30 – 15:30

Have you been touched by amyotrophic lateral sclerosis? Would you like to share and exchange with others who understand your experience with ALS?

Two groups are offered simultaneously: one for the people with ALS and one for caregivers. The purpose of this dedicated time and space is to share your experiences, discuss your concerns, and exchange information and resources with others. Our psychosocial counselors are bilingual are available to translate as required.

  • Free parking, accessible for people with reduced mobility
  • Possibility of reimbursement for travel and respite expenses to facilitate participation
  • Drink and snack included

Rooms: Longueuil for caregivers and Montérégie for people with ALS

* Possibility of cancellation if 3 or fewer people register

Logo_Appui

Apr
6
Thu
Support group – Laurentides @ Centre Culturel Louis St-Laurent
Apr 6 @ 10:00 – 12:00
Support group - Laurentides @ Centre Culturel Louis St-Laurent | Lorraine | Québec | Canada

You are invited to join one of our open support groups: there will be one for people with ALS and another for caregivers. Coffee, juice and snacks will be offered. You may bring a cold lunch.

Apr
9
Sun
Spaghetti Lunch @ Salle St-Louis de Montfort,
Apr 9 @ 11:30
Spaghetti Lunch @ Salle St-Louis de Montfort,  | Laval | Québec | Canada

PASTA! PASTA! PASTA!

Join us for a pasta party as we raise funds for the Fondation Charles-Bruneau and the ALS Society of Quebec.

Bring your own wine!

The spaghetti lunch will take place on Sunday, April 9th at 11:30 am at the Salle St-Louis de Montfort.

Ticket Price : 

Adults : $15

Kids (5 to 12 years old) : 5$

Kids (Under 5 years old) : Free

Purchase yours tickets in advance with Pierrette at pier007001@sympatico.ca.

Technical Aid And Financial Assistance

The ALS Society of Quebec facilitates the rental of equipment that helps improve the quality of life for people with ALS but that is not provided free of charge under the provincial healthcare system. In cases of urgent need, the Society can defray purchasing or rental costs for certain equipment that the patient requires immediately, but that the concerned institution cannot immediately provide.  The Society also has programs related to minor home adaptations and financial contributions towards services not normally covered by any governmental program.  Please note that any request for financial aid must come from a health professional.

To find out more about the programs, please contact us.

Financial contribution for respite

Caring for the caregiver: Respite Care Pilot Program aims to support families of people living with ALS

RespiteIn December 2014, the ALS Society of Quebec conducted a CROP survey with its members—people living with ALS, their caregivers and healthcare providers—to get feedback on the Society’s services and determine their most pressing needs. One of the main findings of the survey was the need for respite care. Feedback from the survey showed that not only is respite care a vital issue, but that it means different things to different people. ALS is a complex disease and family members can have very different needs at various stages. Our new respite care program is designed to support families in meaningful ways that will complement the services already available to them.

The Respite Care Program is being launched thanks to the hugely successful Ice Bucket Challenge (IBC) in 2014, which coincides with ALS Society of Quebec board member, Chantal Lanthier`s proposal for such a program, shortly before the IBC made headlines.

How the program works

Families must request respite care services through their CLSC (social worker or occupational therapist); a form to request reimbursement will be made available to members. Any questions about the program may be sent to Kate Busch at the ALS Society of Quebec

Initially, the Respite Care Program will take the form of a six-month pilot project. Members of the ALS Society of Quebec will be eligible to receive up to $1,500 annually, to reimburse expenses for respite care, in order for those caring for someone with ALS to find additional support or the opportunity to take a break from their ongoing responsibilities. Diane Tkalec, ALS Society of Quebec board member and Respite Care Program committee member explains that the idea is to help maintain health and wellness by reducing stress. Not only will funds be provided, but families will be able to choose the services that suit their specific needs. Examples include getting help from local homecare providers for days, nights or weekends or spending time at an adapted care facility.

p24-back-cover-marches

Quebec Walks for ALS

All across Canada, thousands of people gather together and walk for ALS to demonstrate their support and solidarity towards families touched by the disease and Quebec is no exception.  From the Outaouais to Rivière-du-Loup and then to Montreal, 10 ALS Walks have taken place across the province to raise a total of more than $270,000. […]

p14-michel-tremblay-et-hugo-girard

A dedicated community

p12-les-nouveaux-superheros

The Nouveaux Super-héros: Cycling to save lives

“People should ride for ALS because it’s such an incredible feeling to help those who can’t ride  and who’d give anything just to be on a bike, riding next to us. People living with ALS are the real superheroes.” –Simon Tooley, Ride to Fight ALS participant For the second year in 2016, the Nouveaux Super-héros […]

Mar 23 @ 17:00 – 20:00 ALS Society of Quebec
Exchange – Respite – Massage– Entertainment Come meet, grab a bite, enjoy a massage, and socialize with other caregivers in a warm and cozy atmosphere. Please join us! We look forward to seeing you! Date[...]
Mar 29 @ 13:00 – 16:00 Caisse Desjardins du personnel municipal de Québec
Educational activity for caregivers in Quebec city The goal of this workshop is to empower caregivers and people with ALS by improving their sense of well-being in the evolving context of the disease. Parents, spouses,[...]
Mar 30 @ 11:30 – 15:30 Cabane à sucre Lalande
Members and caregivers are invited to celebrate the arrival of spring with our annual sugar shack outing! A free traditional meal will be served! Location: Cabane à sucre Lalande – 862, Montée Laurin in Saint-Eustache  J7R[...]
Mar 31 @ 18:00 Dawson College
The 10th annual Tony Proudfoot Ergathon fundraiser will be held on Friday, March 31st at Dawson College at 6: 00 PM. This year’s fundraising goal is $20,000. Organized by the Dawson Rowing Team, it benefits[...]