Our Programs and Services for people living with ALS, caregivers and healthcare professionals

The Amyotrophic Lateral Sclerosis Society of Quebec is dedicated to improving the lives of people living with ALS as well as their caregivers. Through our close collaboration with healthcare partners, we are able to offer a variety of programs and services that are complementary to those offered through the healthcare system and by other organizations.

The ALS Society of Quebec understands that the needs of those touched by ALS change over time, which is the reason behind the variety of the services offered. Through documentation, conferences, and our website, people with ALS, caregivers and healthcare professionals can learn about issues related to ALS.

Through one on one or group contact with our psychosocial counselors, members can receive support, starting with an initial call upon becoming a member and continuing  with support groups, follow up phone calls, or phone support as needed (a toll-free support line is available). Through social and networking activities, members can also reduce social isolation which some may feel.

Please note that in order to access to our services, you need to register as a member.

To register

Please select the registration form that corresponds best to your situation:

Orientation and reference

The ALS Society of Quebec offers its members personalized psychosocial support. Our team of four psychosocial counselors are dedicated to helping you and your loved ones during all stages of the disease.

 

Toll-free line

Contact us at 514 725-2653 (or toll-free in Quebec 1 877 725-7725) to speak to a psychosocial counselor or schedule an appointment. Our team of counselors can answer your questions and concerns, as well as those of your family.

 

Support groups

We organize monthly social and support activities such as outings, support groups, and conferences. These informal and friendly events are perfect to meet and exchange with people going through a situation similar to yours. Visit our Events Calendar to browse our upcoming events.

 

Teleconferences

In order to reach as many people throughout the province as possible, we offer many phone conferences.

The ALS Society of Quebec facilitates the rental of equipment that helps improve the quality of life for people with ALS but that is not provided free of charge under the provincial healthcare system. In cases of urgent need, the Society can defray purchasing or rental costs for certain equipment that the patient requires immediately, but that the concerned institution cannot immediately provide.  The Society also has programs related to minor home adaptations and financial contributions towards services not normally covered by any governmental program.  Please note that any request for financial aid must come from a health professional.

Download the form here

To find out more about the programs, please contact us.