When organizing any kind of activity, our most important goal is to get people out and socializing with others. We believe in the soothing nature of human contact. To offer continuous support to those affected by amyotrophic lateral sclerosis (ALS), their families and their caregivers, we organize events and activities all year round.

To find out about our educational, support and social activities, consult the Calendar of Events.

Support and education

Each month, we offer a variety of support and education events, such as conferences, support groups, and teleconferences. Here are our upcoming Support and Education events:

Oct
25
Wed
Conference: exercising and ALS @ The ALS Society of Quebec
Oct 25 @ 13:30 – 15:00
Conference: exercising and ALS @ The ALS Society of Quebec | Mount Royal | Quebec | Canada

All are invited! You will be able to have a general idea on the sort of exercises you can do depending on the stage of the illness, including cardio-respiratory exercises, strengthening and flexibility exercises. You will also learn when to stop doing certain exercises and to replace it with something more appropriate.

At the end of this presentation you will have answers to the following questions:

– Can I exercise?
– What is the realistic outcome I can expect from exercising?
– Are there any risks involved in some exercises?

Guest speaker: Nathalie Langevin, physiotherapist from the CISSS de la Montérégie Centre
Time: 1:30pm to 3:00pm
Location: The ALS Society of Quebec Office
Registration: Elizabeth at 514 725-2653, ext. 103 or ebarbosa@sla-quebec.ca

Oct
26
Thu
Phone meeting
Oct 26 @ 13:30 – 15:30
Phone meeting

We are happy to announce regional phone meetings for people with ALS, caregivers and healthcare professionals. Meet other people touched by ALS in your region. Discuss, share your feelings and concerns and talk about your journey in a safe environment.

Bas St-Laurent & Gaspésie Îles-de-la-Madeleine

When: Thursday September 28th from 1:30pm to 3:30pm

Saguenay Lac St-Jean, Capitale nationale & Chaudière-Appalaches (in French)

When: Thursday October 26th, from 1:30pm to 3:30pm

Registration:  Elizabeth at ebarbosa@sla-quebec.ca or 1 877 725-7725 ext. 103

For more more information please contact our psychosocial counselor Yves Lafleur by email ylafleur@sla-quebec.ca or telephone at 1 877 725-7725 ext: 107

Oct
31
Tue
Support Group – Monteregie @ Centre Montérégien de Réadaptation
Oct 31 @ 13:30 – 15:30

Have you been touched by amyotrophic lateral sclerosis? Would you like to share and exchange with others who understand your experience with ALS?

Two groups are offered simultaneously: one for the people with ALS and one for caregivers. The purpose of this dedicated time and space is to share your experiences, discuss your concerns, and exchange information and resources with others. Our psychosocial counselors are bilingual are available to translate as required.

  • Free parking, accessible for people with reduced mobility
  • Possibility of reimbursement for travel and respite expenses to facilitate participation
  • Drink and snack included

Rooms: Longueuil for caregivers and Montérégie for people with ALS

* Possibility of cancellation if 3 or fewer people register

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Nov
6
Mon
Support Group by NOVA West Island
Nov 6 @ 18:00 – 20:00
Support Group by NOVA West Island @ Beaconsfield | Québec | Canada

ALS caregiver support Group

In partnership with Nova West Island and with the generous support of the Tony Proudfoot Fund, monthly meetings are organized with fellow ALS caregivers to discuss some of the challenges each are facing. Although each person engages according to their comfort level, caregivers are encouraged to participate by sharing their personal experiences with others who are in a similar situation.

When: The 1st Monday of every month from 6-8 pm

Where: 447 Beaconsfield Blvd. Beaconsfield, H9W 4C2

Nova West Island will provide free of charge:

  • Two experienced home care nurses to facilitate the group
  • Health Care Aides, for home support, [in our catchment area] to facilitate the caregivers attendance at the meetings

Possible topics and guest speakers:

  • Home adaptation
  • Community resources
  • Insurance coverage
  • Compassionate Benefits
  • Spiritual guidance
  • Social worker/Family Therapist
  • Children Support

For more information or to register, please contact Viviane Schami at 514-695-8335, ext. 209 or e-mail vschami@novawi.org

Nov
8
Wed
Regional conference on ALS: Laval @ CLSC Ste-Rose
Nov 8 @ 13:30 – 17:00

Better understand Amyotrophic Lateral Sclerosis

Conference for people living with ALS, their loved ones and healthcare professionals 

Location: CLSC de Ste-Rose, 280, boul. du Roi-du-Nord, Laval, QC H7L 4L2, Room: 930 (in the basement)
Time: 1:30pm to 5:00pm
Registration: Elizabeth Barbosa at 514 725-2653 extension 103 or ebarbosa@sla-quebec.ca

Schedule

1:30pm Presentation of services offered by the ALS Society of Quebec

1:45pm: Understanding ALS with Dr Geneviève Matte, neurologist

3:15pm: Q&A session

3:30pm:
 Break

3:45pm:
Respiratory difficulties in ALS: a global approach to a better understanding and control, with Jean Bilodeau, clinical nurse (B.Sc.Inf.)

5:00pm: End

About the guest speakers

Dr Geneviève Matte

Dr Geneviève Matte, neurologist

Dr. Geneviève Matte  is a neurologist specializing in neuromuscular diseases at the Centre Hospitalier de l’Université de Montréal (CHUM) (Hôpital Notre-Dame).

Jean Bilodeau, clinical nurse

Jean Bilodeau, clinical nurse

Jean Bilodeau is a clinical nurse and  a guest speaker for the ALS Society of Québec and a home ventilation consultant for complex respiratory issues.

Nov
21
Tue
Support Group – Quebec City @ Centre Noël-Brulart, rooms #107 and #104
Nov 21 @ 13:30 – 15:30
Support Group - Quebec City @ Centre Noël-Brulart, rooms #107 and #104 | Québec | Québec | Canada

Two support groups take place simultaneously in the Quebec City region: the first group is intended for caregivers and the second group is for people with ALS. (Free parking)

Date and time: Tuesdays, from 1:30pm to 3:30pm. 
Location: Centre Noël-Brulart (1229, Chanoine-Morel, Quebec, G1S 4B1)
Room 107 for caregivers and Room 104 for people with ALS
Registration: Odette Lacroix  418-626-8726 or 418-655-8726

Nov
30
Thu
Support group – Laurentides @ Centre Culturel Louis St-Laurent
Nov 30 @ 10:00 – 12:00
Support group - Laurentides @ Centre Culturel Louis St-Laurent | Lorraine | Québec | Canada

You are invited to join one of our open support groups: there will be one for people with ALS and another for caregivers. Coffee, juice and snacks will be offered. You may bring a cold lunch.

Dec
4
Mon
Support Group by NOVA West Island
Dec 4 @ 18:00 – 20:00
Support Group by NOVA West Island @ Beaconsfield | Québec | Canada

ALS caregiver support Group

In partnership with Nova West Island and with the generous support of the Tony Proudfoot Fund, monthly meetings are organized with fellow ALS caregivers to discuss some of the challenges each are facing. Although each person engages according to their comfort level, caregivers are encouraged to participate by sharing their personal experiences with others who are in a similar situation.

When: The 1st Monday of every month from 6-8 pm

Where: 447 Beaconsfield Blvd. Beaconsfield, H9W 4C2

Nova West Island will provide free of charge:

  • Two experienced home care nurses to facilitate the group
  • Health Care Aides, for home support, [in our catchment area] to facilitate the caregivers attendance at the meetings

Possible topics and guest speakers:

  • Home adaptation
  • Community resources
  • Insurance coverage
  • Compassionate Benefits
  • Spiritual guidance
  • Social worker/Family Therapist
  • Children Support

For more information or to register, please contact Viviane Schami at 514-695-8335, ext. 209 or e-mail vschami@novawi.org

Social Activities

Our social activities allow our members to create their own support network, to talk to others in the same situation and break the loneliness sometimes experienced by people with ALS. Here are our upcoming social activities: