FOR YOU AND WITH YOU
At the ALS Society of Quebec, we believe in the importance of providing an interdisciplinary approach in the care of people with amyotrophic lateral sclerosis (ALS). We appreciate the continued care and support that you offer to families affected by this disease. In this section, you will find a variety of services, assistance programs and resources to guide you through the provision of care to your ALS patient.
The About ALS section contains basic information about ALS, as well as information on the following subjects:
- About ALS
- Various Forms of ALS
- How ALS is Diagnosed
- Facts about ALS
- Legal and Financial Information
- Specialized ALS Clinics
- Other ALS Resources
In the midst of these extraordinary and uncertain times, ALS doesn’t stop—and neither do we. Please note that due to the impacts of the COVID-19 pandemic, our Programs and Services are being reviewed, including those of our financial and technical assistance programs. The anticipated revenues for this year will likely not be realized, despite all of our ongoing fund development efforts. Under the circumstances, it is unfortunately impossible for us to guarantee that the previously known financial and technical assistance programs will be available. Only requests for the pressing needs of the most economically or socially vulnerable families will now be considered. At the moment, we are actively exploring all avenues for a sustainable solution so that families affected by ALS can receive the support and assistance they need.
Make a request
The request must be completed by a health professional from either the CLSC or other health establishment. The request must include two estimates for the cost of renting or purchasing the required equipment.
Technical Aid and Financial Assistance form
Please note that the person must be registered with the ALS Society of Quebec in order to be eligible to the program: download the PDF form or register online.
In case of urgent need, our program allows members of ALS Quebec to receive the equipment they need immediately. We are the payer of last resort.
All requests must first be approved by the appropriate funding government agency or organization, such as:
- Assistive Devices for Daily Living (AVD/AVQ)
- Régie de l’assurance maladie du Québec (RAMQ)
- Scooter and wheelchair programs from the government of Quebec
- Communication device programs
- Income maintenance plan or private insurance, as the case may be
The Resources section contains publications, reference material and links to useful websites that can assist people with ALS, their families and their caregivers. Each service is personalized to suit individual needs.