The ALS Society of Quebec offers a wide variety of services to people living with ALS as well as to their family members.


  1. Inform you and your family about the disease and the services and resources that are available to you
  2. Provide emotional support, guidance, references and information in a one on one or group format as well as presentations, conferences, group discussions and programs for teens and children.
  3. Loan equipment and provide limited financial assistance.
  4. Organize social activities and networking events

Click here to register to the ALS Society of Quebec.

Inform People With ALS And Their Families

To find out more about ALS, consult the About ALS section.

You will find the following information:

You can also download the Manual for People Living With ALS. It is a useful reference tool filled with practical advice and tips. It also contains a general description of ALS, the signs and symptoms, and the latest developments in research.

To obtain a hard copy of the Manual, please contact us.

About ALS Research

The Research section is dedicated to reporting the latest developments in ALS research.


Consult the Testimonials section to read about real stories that may inspire you or those around you.

Provide Care And Emotional Support

Throughout the progression of the disease, personalized support is available to you and your loved ones. Since everyone’s needs are different, our services are adapted to suit every individual. This support can be provided in a one-on-one session or as part of a group.

Guidance and Referrals

The ALS Society of Quebec welcomes anyone who has been diagnosed with amyotrophic lateral sclerosis or primary lateral sclerosis. Our caring team is always there to lend a sympathetic ear. We also provide relevant answers to your questions, and a variety of documents specially developed for people with ALS.

And let us not forget your loved ones, who often become your caregivers. They too can take advantage of our information and support services since their lives will also be turned upside down by this disease.

The ALS Society helps you navigate through the information by explaining the various healthcare and social services offered, and determining which ones are right for you.

We can also explain the different fields of expertise and the roles of each health professional who will most likely treat you through the various stages of the disease. And ALS Quebec will be there every step of the way—we will follow up with you regularly to make sure that you are receiving all of the services to which you are entitled.

Support Groups

The Society organizes information sessions and group discussions for people living with ALS, their families and their healthcare professionals. The topics are selected in response to the needs and interests expressed by members. After the presentations, participants are invited to ask questions and take part in discussions.

For the dates, locations and topics of our next meetings, consult the Calendar of Events.

If you have any questions or would like to suggest a topic for discussion, please contact us.

Interactive Group Meetings

The interactive group meetings are intended for both people with ALS and their caregivers. These informal gatherings take place between people who may be going through similar experiences. To facilitate discussion, participants are divided into two groups: one group for people with ALS and another for caregivers.

For the dates, locations and topics of our next meetings, consult the Calendar of Events.

Programs for Children and Teens

The ALS Society of Canada has created ALS411 a support and information program designed to help children and teens who have a parent living with ALS.

Find out more about the program and its resources by visiting

Offer Technical Aid and Financial Assistance Programs

The Society provides you with equipment that can help improve the quality of your life but that is not provided free of charge under the provincial healthcare system.

In cases of urgent need, the ALS Society of Quebec can defray purchasing or rental costs for certain equipment that you require immediately, but that the concerned institution cannot immediately provide. Under a contractual agreement with the concerned institution, the ALS Society of Quebec will ensure that you receive the equipment needed sooner for a predetermined length of time.

The technical aid and financial assistance policy is subject to three conditions:

  1. The request must comply with the program objectives.
  2. The patient must be eligible and meet the eligibility criteria.
  3. Requests must be submitted to the ALS Society of Quebec by an occupational therapist or any other health professional treating you.

To find out more about the financial assistance programs, contact us.

Organize Social Activities And Social Networking Events

Consult our Calendar of Events in the Support and Services section.

Regional Programs

The ALS Society travels regularly to regional communities to meet with people with ALS and their caregivers. Our goal is to become familiar with their needs, provide services, and increase awareness of the disease among the general public and the health practitioners in those regions.

These meetings can include a presentation on a specific ALS topic, discussion forums with specialists, or testimonials by people who have been touched by the disease.

For the dates and the next regions visited, consult our Calendar of Events.


To find a clinic specialized in the treatment of ALS, consult the Clinics section.


Sign up for the newsletter by visiting the Get Involved section.