HELPING CHILDREN COPE WITH ALS
When a family member is diagnosed with amyotrophic lateral sclerosis (ALS), children may have many questions and concerns about the person they know and love. We offer these guidelines as a tool to assist your family when talking or sharing information or personal feelings about ALS. You may also want to share this information with other key figures involved in your children’s lives, such as coaches and teachers.
If you are a young person living with a loved one who has ALS, you can talk with other youths who are going through something similar. Simply go to www.als411.ca, a site made especially for you.
Below are a few resources that can also help you through this journey.
EXTRA-CURRICULAR ACTIVITIES FOR CHILDREN
The Society helps fund extra-curricular activities for children of people diagnosed with ALS. The program provides up to $300 a year, per child, for children under the age of 18. The program goals are to promote and support the healthy development of children whose parents have ALS with the added benefit of providing parents peace of mind that their children will have opportunities for play and activities.
For more information, contact Kate Busch at firstname.lastname@example.org, or 1-877-725-7725 ext. 109.
INFORMATION AND SUPPORT BOOKLETS
To help families affected by ALS, the ALS Society of Canada has published four guides destined for parents, children, teens and schools. They provide valuable answers and information to help address the questions and concerns that children and teens may have when facing this disease.
- Helping Children Cope with ALS—a Parental Information Guide
- When Someone Special has ALS—A Booklet for Children
- When Your Parent has ALS—A Booklet for Teens
- Talking With Young People About ALS—For Schools
WEEKEND ACTIVITIES FOR YOUTHS
The ALS Society of Canada organizes a weekend of activities for up to 25 young people between 15 and 24 years old from across the country. It is an opportunity for you to garner the support of your peers and strengthen your ties to this community. For more information, contact us: email@example.com
WEBSITE FOR YOUTHS
La maladie grave d’un proche vécue par les jeunes [French only]
A bibliography is available in the Resources section. There you will find books about ALS, specially written for children.