Family Caregiver Alliance – National Center on Caregiving

Family Caregiver Alliance – National Center on Caregiving

Founded in the late 1970s, Family Caregiver Alliance(FCA) is the first community-based non
profit organization in the United States of America to address the needs of families and friends providing long-term care for loved ones at home. The services, education programs, and resources FCA provides are designed with caregivers’ needs

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Helping Children Cope With ALS – A Parental Information Guide

Helping Children Cope With ALS – A Parental Information Guide

An illness like ALS brings about many changes and affects every member of the family.  Children and teens may have concerns, fears and questions they don’t know how to cope with or articulate. The following resources are designed specially to help children and teens who have a family member living

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When Someone Special Has ALS

When Someone Special Has ALS

This booklet is designed for children and will address some of the questions they may have about ALS including: What is ALS? What parts of the body are affected? What causes it? Will I get it? Do people with ALS get better? It will also help them address what they

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A Guide to ALS Patient Care for Primary Care Physicians

A Guide to ALS Patient Care for Primary Care Physicians

This guide is for general practitioners who have a patient who has been diagnosed with ALS, or who is suspected to have ALS. It will assist you in recognizing the signs and symptoms of ALS, understanding ALS progression, symptom management, changing patient needs, the importance of interdisciplinary ALS care, and

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When Your Parent Has ALS – A Booklet For Teens

When Your Parent Has ALS – A Booklet For Teens

Approximately 3,000 people in Canada are living with ALS, so children may not be able to find support among their peers. This booklet includes helpful information provided by young people who know what it’s like to have a parent with ALS. They talk about their experiences, worries, and fears, and

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Talking with Young People About ALS- For Schools

Talking with Young People About ALS- For Schools

This booklet aims to familiarize educators with ALS by providing a better understanding of what a student whose parent has ALS must cope with, and by suggesting how school personnel can be supportive not only while the disease progresses, but also during bereavement.
 
Talking with Young People About ALS

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