The first part of this presentation, provided by Anita Mehta, addresses ALS and the long-term implications (including death). In addition, it addresses the concepts and philosophy central to Palliative Care and some common misconceptions. The application and implications of Palliative Care to ALS population is discussed. Finally, family caregiver implications
Me Hélène Guay dirige un cabinet juridique de litige et représente des victimes d’erreurs médicales ou leurs familles, et des personnes qui font l’objet de demandes ayant trait à leur capacité ou à leur intégrité. Elle intercède en faveur du respect des droits des personnes devant les instances administratives (plaintes
We are pleased to present this bilingual presentation on current ALS Research, held on February 24th, 2021. A Q&A follows the conference.
1. Dr. Richard Robitaille, PhD, Full Professor, Neurosciences Department, Université de Montréal
2. Dr. Angela Genge, Neurologist and Director of the ALS Clinic and the Clinical Research
The Canadian ALS Research Network (CALS) offers you an explanatory document in which you will find the answers to the following questions:
Is the vaccine safe?
Should people living with ALS be considered a vulnerable population?
Should I receive the vaccine?
When and where can I get the vaccine?
“With change comes adjustment and resilience.” – Odette Lacroix
Back in 2001, when my husband Pierre was diagnosed with ALS, the outlook for people living with the disease was very different. At the time, there was only one support group in the entire province, so we had to travel to
“The pandemic is taking a toll on caregivers” – Jocelyn Théorêt
Since the start of the pandemic, many people have asked me how I’ve been coping with the lockdown. My first instinct is always to say that it hasn’t made much difference to me, since I’m always at home helping
“Fighting with Positivity and Hope” – Elias Makos
When my 74-year-old mother began having mobility issues, my family assumed that old age was finally getting to my active mother who had always been a dynamo. But as different treatments failed to show any results, doctors began to suspect something far more
In this conference, Dr. Genevieve Matte, Neuroscience researcher at the CHUM Research Center, presents useful information on managing the new reality of telehealth in a COVID environment.
WATCH THE CONFERENCE (in English)
OUR LOCKDOWN IS REAL.
Locked inside my own body, confined to my wheelchair, deprived of my independence and freedom.
The COVID-19 pandemic and Amyotrophic lateral sclerosis (ALS), better known as Lou Gehrig’s disease, have a lot in common.
The pandemic has forced us all to isolate to some degree,