“With change comes adjustment and resilience.” – Odette Lacroix
Back in 2001, when my husband Pierre was diagnosed with ALS, the outlook for people living with the disease was very different. At the time, there was only one support group in the entire province, so we had to travel to
“The pandemic is taking a toll on caregivers” – Jocelyn Théorêt
Since the start of the pandemic, many people have asked me how I’ve been coping with the lockdown. My first instinct is always to say that it hasn’t made much difference to me, since I’m always at home helping
“Fighting with Positivity and Hope” – Elias Makos
When my 74-year-old mother began having mobility issues, my family assumed that old age was finally getting to my active mother who had always been a dynamo. But as different treatments failed to show any results, doctors began to suspect something far more
OUR LOCKDOWN IS REAL.
Locked inside my own body, confined to my wheelchair, deprived of my independence and freedom.
The COVID-19 pandemic and Amyotrophic lateral sclerosis (ALS), better known as Lou Gehrig’s disease, have a lot in common.
The pandemic has forced us all to isolate to some degree,
By Chantal Lanthier, living with ALS since 2013
At a loss for words
I’m often told that my eyes speak volumes. Good thing, because I don’t have a voice anymore. Of all the losses I’ve had to go through over the past five years because of this disease, my voice
Are you more a beach person or a hiking person? When you think about relaxing, what comes to mind? I’m sure that whatever you pictured, it has something to do with nature. As for me, I can’t get enough of long walks in the woods. The time I spend surrounded
November 18, 2015. The coach of the Sherbrooke Bulldogs and former coach of the Vert et Or, James Benoit, is preparing to face his biggest opponent, on an unknown field: ALS. The next day, he wipes off the last tears that stream down his cheeks and decides to play the
As long as there is a song…
I cherished the tought of being back on stage. However life decided otherwise.
On September 18, 2013, my amyotrophic lateral sclerosis diagnosis hit me like a tsunami.
The shock!
I was hit directly at the core. The feelings I had of sorrow, anger, fear,
Living life happily despite ALS
When I received my diagnosis that I have amyotrophic lateral sclerosis back in January 2014 it was obviously an incredible shock. After a difficult month in which I struggled to share the news with family and friends, I decided the live my life to the
