Fact Sheets

Fact Sheets

These fact sheets are produced by the ALS Society of Canada and include a variety of topics and factual information related to ALS.  Themes include content to help you and your family navigate the journey, information specifically intended for caregivers and tips on how to manage various aspects of the disease. [...]
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Guide For People Living with ALS

Guide For People Living with ALS

This comprehensive guide offers an overview of what ALS is, tips and tools for people with ALS and their caregivers, disease management and assistive equipment information, legal and financial considerations, and more.
 
GUIDE

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Helping Children Cope With ALS – A Parental Information Guide

Helping Children Cope With ALS – A Parental Information Guide

An illness like ALS brings about many changes and affects every member of the family.  Children and teens may have concerns, fears and questions they don’t know how to cope with or articulate. The following resources are designed specially to help children and teens who have a family member living

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When Someone Special Has ALS

When Someone Special Has ALS

This booklet is designed for children and will address some of the questions they may have about ALS including: What is ALS? What parts of the body are affected? What causes it? Will I get it? Do people with ALS get better? It will also help them address what they

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When Your Parent Has ALS – A Booklet For Teens

When Your Parent Has ALS – A Booklet For Teens

Approximately 3,000 people in Canada are living with ALS, so children may not be able to find support among their peers. This booklet includes helpful information provided by young people who know what it’s like to have a parent with ALS. They talk about their experiences, worries, and fears, and

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Talking with Young People About ALS- For Schools

Talking with Young People About ALS- For Schools

This booklet aims to familiarize educators with ALS by providing a better understanding of what a student whose parent has ALS must cope with, and by suggesting how school personnel can be supportive not only while the disease progresses, but also during bereavement.
 
Talking with Young People About ALS

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Office des personnes handicapées du Québec – Guide to Programs for People with Disabilities, Their Families and Caregivers

Office des personnes handicapées du Québec – Guide to Programs for People with Disabilities, Their Families and Caregivers

This guide aims to facilitate access to information about the programs offered to people with disabilities, their families and their caregivers. Among other things, it presents programs related to income support, home support, housing, employment, technical aids, childcare, education, transportation, recreation, sports, culture and community life. It also describes Québec’s

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