In November 2020, the first-ever ALS Canadian best practice recommendations (BPRs) were published in the Canadian Medical Association Journal(CMAJ). Developed over a number of years by a working group of Canadian ALS clinicians, this document represents what specialists in ALS care agree should be the standard of care for any
Fact Sheets
These fact sheets are produced by the ALS Society of Canada and include a variety of topics and factual information related to ALS. Themes include content to help you and your family navigate the journey, information specifically intended for caregivers and tips on how to manage various aspects of the disease. [...]
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Guide For People Living with ALS
This comprehensive guide offers an overview of what ALS is, tips and tools for people with ALS and their caregivers, disease management and assistive equipment information, legal and financial considerations, and more.
GUIDE
Unlocking the potential of nutrition is essential for families living with ALS.
As March 20th marks an important day: National Dietitians Day and World Oral Health Day, the ALS Society of Quebec has been hard at work updating, a soon to be released, Nutritional Toolkit called, “Culinary Caring”. It will include new content to help families address the changing needs in nutrition
Helping Children Cope With ALS – A Parental Information Guide
An illness like ALS brings about many changes and affects every member of the family. Children and teens may have concerns, fears and questions they don’t know how to cope with or articulate. The following resources are designed specially to help children and teens who have a family member living
When Someone Special Has ALS
This booklet is designed for children and will address some of the questions they may have about ALS including: What is ALS? What parts of the body are affected? What causes it? Will I get it? Do people with ALS get better? It will also help them address what they
When Your Parent Has ALS – A Booklet For Teens
Approximately 3,000 people in Canada are living with ALS, so children may not be able to find support among their peers. This booklet includes helpful information provided by young people who know what it’s like to have a parent with ALS. They talk about their experiences, worries, and fears, and
Talking with Young People About ALS- For Schools
This booklet aims to familiarize educators with ALS by providing a better understanding of what a student whose parent has ALS must cope with, and by suggesting how school personnel can be supportive not only while the disease progresses, but also during bereavement.
Talking with Young People About ALS
Mon papa, la SLA et moi – Charles Goethals et Naïma Belalouz (illustrations par Odile Santi)
Écrit par Charles Goethals et Naïma Belalouz en 2016, ‘Mon papa la SLA et moi ’ est un livret qui est destiné aux enfants âgés de 2 à 6 ans et aide à entamer la conversation sur la SLA avec douceur.
Mon papa, la SLA et moi.
Office des personnes handicapées du Québec – Guide to Programs for People with Disabilities, Their Families and Caregivers
This guide aims to facilitate access to information about the programs offered to people with disabilities, their families and their caregivers. Among other things, it presents programs related to income support, home support, housing, employment, technical aids, childcare, education, transportation, recreation, sports, culture and community life. It also describes Québec’s