In November 2020, the first-ever ALS Canadian best practice recommendations (BPRs) were published in the Canadian Medical Association Journal(CMAJ). Developed over a number of years by a working group of Canadian ALS clinicians, this document represents what specialists in ALS care agree should be the standard of care for any
The Technology Access Program at the Lethbridge-Layton-Mackay Rehabilitation Centre (LMLRC) prepared this document in 2020 which presents technology solutions for equipment not covered by the Quebec Ministry of Health and Social Services (MHSS) program “Programme ministériel des aides techniques à la communication (PMATCOM)” for people living in residential or long-term
This comprehensive guide offers an overview of what ALS is, tips and tools for people with ALS and their caregivers, disease management and assistive equipment information, legal and financial considerations, and more.
Culinary Care in ALS – A Nutritional Toolkit
The ALS Society of Quebec has been hard at work updating a Nutritional Toolkit called “Culinary Care in ALS” and is excited to make it available to the ALS Community during Nutrition Month 2021. It includes new content to help
This guide is for general practitioners who have a patient who has been diagnosed with ALS, or who is suspected to have ALS. It will assist you in recognizing the signs and symptoms of ALS, understanding ALS progression, symptom management, changing patient needs, the importance of interdisciplinary ALS care, and
This booklet aims to familiarize educators with ALS by providing a better understanding of what a student whose parent has ALS must cope with, and by suggesting how school personnel can be supportive not only while the disease progresses, but also during bereavement.
Talking with Young People About ALS
This checklist was developed by the “Table des Partenaires” Committee in 2012 and updated in September 2020. The aim of this tool is to help highlight information to be discussed with families living with an ALS or PLS diagnosis over the course of their illness.
Download the checklist:
This booklet is designed to help health care professionals reinforce with their patients the importance of considering family dynamics in the care and management of a person living with ALS, and in particular how to help young children understand the diagnosis and management of their parent’s illness.