In November 2020, the first-ever ALS Canadian best practice recommendations (BPRs) were published in the Canadian Medical Association Journal(CMAJ). Developed over a number of years by a working group of Canadian ALS clinicians, this document represents what specialists in ALS care agree should be the standard of care for any
This comprehensive guide offers an overview of what ALS is, tips and tools for people with ALS and their caregivers, disease management and assistive equipment information, legal and financial considerations, and more.
As March 20th marks an important day: National Dietitians Day and World Oral Health Day, the ALS Society of Quebec has been hard at work updating, a soon to be released, Nutritional Toolkit called, “Culinary Caring”. It will include new content to help families address the changing needs in nutrition
This guide is for general practitioners who have a patient who has been diagnosed with ALS, or who is suspected to have ALS. It will assist you in recognizing the signs and symptoms of ALS, understanding ALS progression, symptom management, changing patient needs, the importance of interdisciplinary ALS care, and
This booklet aims to familiarize educators with ALS by providing a better understanding of what a student whose parent has ALS must cope with, and by suggesting how school personnel can be supportive not only while the disease progresses, but also during bereavement.
Talking with Young People About ALS
This checklist was developed by the “Table des Partenaires” Committee in 2012 and updated in September 2020. The aim of this tool is to help highlight information to be discussed with families living with an ALS or PLS diagnosis over the course of their illness.
Download the checklist:
This booklet is designed to help health care professionals reinforce with their patients the importance of considering family dynamics in the care and management of a person living with ALS, and in particular how to help young children understand the diagnosis and management of their parent’s illness.
This guide aims to facilitate access to information about the programs offered to people with disabilities, their families and their caregivers. Among other things, it presents programs related to income support, home support, housing, employment, technical aids, childcare, education, transportation, recreation, sports, culture and community life. It also describes Québec’s