Here are some suggestions for ALS-related films that may be of interest to you. Do you have any other suggestions or useful information? Do not hesitate to send us your recommendations to [email protected]! * Please note that the ALS Society of Quebec is not responsible for the content within the following film selections.
This documentary by Orlando Arriagada tells the story of Nancy Roch’s relentless fight for access to effective treatments for people with ALS. In March 2017, Nancy Roch learned that she had ALS. She then begins the fight of her life, the one that will help her stay alive. His research and sustained efforts will allow him, as well as dozens of people in Canada, to benefit from a drug hitherto unknown in the country. (In French, 1h25min).
At the age of 34, Steve Gleason, former NFL defensive back, was diagnosed with ALS. Doctors gave him two to five years to live. So that is what Steve chose to do: live. This film incorporates personal video journals from Gleason for his then-unborn son to footage of his adventures undertaken as part of his mission to live his life to the fullest (2h10min)
A former baseball player’s fight against ALS lead to the ice bucket challenge, raising $220 million to combat the neurological disease. Peter Frates played baseball and was beloved by many; his parents and wife Julie recall his ALS diagnosis. This ABC Nightline News film looks behind the challenge and highlights Pete Frates and his courageous battle. (19 min)
Oscar winning movie that takes a look at the relationship between the famous physicist, Stephen Hawking and his wife. As his esteem grows in the world of physics, Stephen Hawking’s body is ravaged by ALS, forcing his increasing dependence on his devoted wife, Jane.
Oscar winner Hilary Swank forges a bond with Emmy Rossum that enriches each of their lives in this drama co-starring Josh Duhamel. The storyline is centered on an accomplished classical pianist who has been diagnosed with ALS and the brash college student who becomes her caregiver.
Produced by Mick Ebling, in this film art and technology combine to achieve an inspirational effect in a stirring documentary tracing the “comeback” of renowned Los Angeles graffiti artist, Tony “TEMPT 1” Quan. After being diagnosed with Lou Gehrig’s disease and rendered almost completely paralyzed, a graffiti artist regains his voice through technology that reads the movement of his eyes and enables him to create art and write once again. Winner of the Audience Award at the 2011 Slamdance Film Festival.
ABC News Presents Morrie Schwartz: Lessons on Living : Tuesdays with Morrie proved to be a highly popular memoir, in which college professor Morrie Schwartz was caught in conversation with former student Mitch Albom. Chronicling his dying days on Ted Koppel’s show, Morrie’s recollections are earnest, heartwarming, and a fascinating glimpse into one man’s final moments on the planet. They are both funny and sad in equal measure, with Morrie displaying all his trademark wit despite his failing health due to ALS. (1h34 min)
This 2004 documentary by Garry Beitel features the life of Phil Simmons, gifted writer and eloquent professor, who celebrates the wonders of life even as he is slowly dying of ALS. As his muscles deteriorate and his body becomes increasingly paralyzed, Simmons continues to ‘wrestle joy from heartbreak’ at each stage of his ongoing losses. This film is a personal view of Phil Simmons and his family on their journey together during the last months of his life. (1h17min)
Phil Simmons is also the author of Learning to Fall.
This video is a 30-minute program from “The Doctor is In” a Dartmouth-Hitchcock Medical Center Production. It studies the cases of two people with ALS and a family caregiver. Expert medical and scientific commentary is provided by Lucie Bruijn, PhD, Research Director and Vice President of The ALS Association, and Jeffery Cohen, MD, a neurologist at Dartmouth-Hitchcock Medical Center. To order this video by phone contact Films Media Group contact a media consultant at 800-257-5126 (option 3)
This 90-minute film is an in-depth, poignant, and personal look at five years in the life of Robert Coley-Donohue, a Vancouver Island resident who lost his wife to ALS and then received the same diagnosis himself later. The film depicts everyday life for Robert chronicling his progression, the support of his family and friends, the complexity of care, and hope and healing as he prepares to die.