Ice Bucket Challenge : $16,2 million in Canada
Donations for research doubled
ALS Societies across Canada are pleased to announce the ALS Ice Bucket Challenge in Canada raised $16.2 million due to the generosity of more than 260,000 Canadians. This represents a record for donations to the ALS community in support of Canadian living with ALS and ALS research from one event.
ALS Societies will invest $10 million in ALS research and $6 million in programs that deliver critical support to Canadians living with ALS.
The ALS Societies are also proud to announce that the funds for ALS research will be matched on a 1:1 basis through a new research partnership with Brain Canada, bringing the total investment in ALS research to $20 million. This is the largest one-time investment in the ALS Canada Research Program in history and has been made possible by the donations received through the ALS Ice Bucket Challenge and the federal government’s Canada Brain Research Fund. The research projects selected for funding will be announced starting as early as December 2014.
“We are incredibly grateful for all of the support and awareness for ALS in the last four months as a result of the ALS Ice Bucket Challenge,” says Tammy Moore, CEO, ALS Canada. “We know donors and our community will be pleased that we have demonstrated strong stewardship of the gift we have received, and that, with the matching research funds from Brain Canada the total impact of the ALS Ice Bucket Challenge is $26 million. We want to thank all of our donors and assure you that we understand how important this is to people and their families living with ALS.”
“On behalf of the Government of Canada, I would like to thank all those Canadians who participated in the ALS Ice Bucket Challenge for their support for people living with ALS and their families,” said Rona Ambrose, Minister of Health. “I am pleased to say that the ALS Societies investment in research is being matched by the federal government’s Canada Brain Research Fund so that the donations from Canadians will be leveraged to their fullest potential. This combined investment is certain to have a transformative impact on ALS research.”
“Brain Canada is proud to partner with ALS societies across Canada in this transformative new research endeavor”, said Inez Jabalpurwala President and CEO, Brain Canada Foundation and NeuroScience Canada Partnership. “Combining our research efforts will without question accelerate the progress of finding a treatment and eventual cure for this terminal disease, and for other neurodegenerative diseases which have similar underlying mechanisms.”
Putting Ice Bucket Challenge donations to work in Quebec
The ALS Society of Quebec is pleased to announce that $2,684,000 was raised by over 75,000 generous Quebecers. In addition to being part of the exciting national research program with ALS Canada and partnership with Brain Canada, donations will be used to expand existing services in the province which include: the purchase of specialized equipment not covered by government agencies, psychosocial counselling for the whole family, information, financial aid programs and support groups. The funds will also be used to develop new services that address the most pressing needs of the community served for the years to come.
“While financial results and awareness of the Ice Bucket Challenge remain astonishing, the joy and warmth felt by families of those affected by the disease is immeasurable. “The Ice Bucket Challenge is an unprecedented demonstration of solidarity that gives hope to all those who are presently battling this fatal disease”. Says Claudine Cook, Executive Director of the ALS Society of QC. “ We are extremely grateful for this outpour of support.”
ALS, amyotrophic lateral sclerosis is a neurodegenerative disease where the cells in the body that control movement die. The “living wires” which connect a person’s brain to their muscles degenerate, leading to a loss of mobility and eventual paralysis,, changes or complete loss of speech and eventually the ability to breathe. ALS is a terminal disease that has no cure, and no effective treatment. Approx. 2,500-3,000 Canadians are living with ALS. It is estimated 1,000 Canadians will die because of ALS and 1,000 will be newly diagnosed each year. The average lifespan is two to five years.
About ALS Societies across Canada
The ALS Societies across Canada are ten independent organizations in each province, working collaboratively in the dedication to provide programs and services to Canadians living with ALS, to fund research and to increase awareness amongst the public, media and government bodies. The ALS Ice Bucket Challenge funds were allocated through this national group, representing each individual province. The funds contributed towards research, is administered through the ALS Canada Research Program.
About ALS Canada Research Program
ALS Canada is a national organization responsible for the ALS Canada Research Program – funding peer-reviewed research grants and fostering collaboration amongst Canadian researchers, helping to nurture new ideas and build capacity. The program accepts applications for funding from Canadian ALS researchers. In 2014, ALS Canada enlisted an International Peer Review Panel consisting of seven world-class ALS researchers who evaluate and rank applicants to ensure donated funds support the best ALS research.
About Brain Canada
Brain Canada is a national non-profit organization headquartered in Montreal, Quebec, that enables and supports excellent, innovative, paradigm-changing brain research in Canada. For more than one decade, Brain Canada has made the case for the brain as a single, complex system with commonalities across the range of neurological disorders, mental illnesses and addictions, brain and spinal cord injuries. Looking at the brain as one system has underscored the need for increased collaboration across disciplines and institutions, and a smarter way to invest in brain research that is focused on outcomes that will benefit patients and families.
The Canada Brain Research Fund
The Canada Brain Research Fund is a public-private partnership designed to encourage Canadians to increase their support of brain research, and maximize the impact and efficiency of those investments. Brain Canada has committed to raising $100 million from private and non-governmental sources, which will be matched by government on a 1:1 basis. The Government of Canada committed up to $100 million over six years (2011-2017) to establish the Canada Brain Research Fund. This fund supports Canadian neuroscience research and advances knowledge and treatment of brain disease and mental disorders, including ALS.
For more information, visit us at www.braincanada.ca.
For more information on the ALS Canada and the partnership with Brain Canada, contact:
James Kenny, Senior Consultant, Hill + Knowlton Strategies, [email protected] 613-786-9958
Rebecca Grima, Director of Marketing and Communications ALS Canada, [email protected] 905.248.2052 x234
For more information on the ALS Society of Quebec, contact :
Claudine Cook, Executive Director at 514725-2653 ext. 101 (office), 514 298-0540 (mobile) or by email [email protected]